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Thread: Mysterious Abdominal Pain Continues to be Mysterious

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  1. #1
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    Default Mysterious Abdominal Pain Continues to be Mysterious

    As some of you may remember, I've been having moderate pain in my lower right abdomen for a few months now. I went to a gynecologist and had an ultrasound, and there was a not-huge simple cyst on my right ovary. Though the doctor thought it was a bit small to be giving most people trouble, she figured that was definitely what was causing my pain, and told me to come back for a follow up ultrasound in about a month.

    So, the pain has continued, and I go to my follow up ultrasound, fully expecting the cyst to still be there or even bigger. But you know what? Completely gone. Cyst-free.

    But I'm still in pain. The pain is strange. It is not GI pain -- it doesn't change with eating or bowel movements. And I can pinpoint exactly where the pain is (honestly, right about where my ovary is, just a few finger widths' in from my hip bone); the pain is not diffuse, and it does not migrate. It does sometimes come and go. My ultrasound was totally normal. It hurts the most when I am sitting upright, like at a table or desk.

    The doctor now believes that the original cyst was not causing me pain at all, and that this pain was caused by something else. The cyst, she thinks, just happened to be there not causing me any trouble when I got the first ultrasound, and we incorrectly assumed the cyst was causing my pain.

    The gynecologist can't think of anything else to do, has no idea what it is, and just told me to call her if it gets worse. Which is just crushing for me to hear-- more pain I'm just supposed to suck up without even knowing what's causing it?

    "Maybe it's your connective tissue disease," she shrugged. Maybe it is. Who knows.

    Have any of you had such pin-pointable, chronic abdominal pain? If so, do you know what caused it? Grasping at straws here.

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    sorry i cannot offer advise.

    but i do have a wide shoulder.

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    Could it come from your back? I was told by my doctor, that alot of times, pain in the lower abdomen comes from the back- back pain. Is that a possibility?
    As I am sitting here, I have a pain on the right side of my lower abdomen, which I feel comes from my hip, that is what my rheumy thinks too.
    Hope they can figure it out for you.

    Debbie
    I may have been dealt a bad hand, but at least I'm still playing with a full deck. ( most of the time anyway).

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    Derrie,
    When my daughter Meg was a young teen she had a similar experience. After her continuing problems with ovarian cysts was ruled out, her doc sent us to a gastro. He suspected Chrone's disease, so she had a colonoscopy. The good news was that it wasn't Chrone's. The even better news was that it was an odd kink in her intestine, which the colonoscopy solved by straightening it out.
    Have you seen a gastro? Just throwing this out there for you.
    Hugs,
    Marla

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    Quote Originally Posted by magistramarla View Post
    Derrie,
    When my daughter Meg was a young teen she had a similar experience. After her continuing problems with ovarian cysts was ruled out, her doc sent us to a gastro. He suspected Chrone's disease, so she had a colonoscopy. The good news was that it wasn't Chrone's. The even better news was that it was an odd kink in her intestine, which the colonoscopy solved by straightening it out.
    Have you seen a gastro? Just throwing this out there for you.
    Hugs,
    Marla
    Yes, that is a good suggestion, Marla. My internist's nurse mentioned a GI doctor when I called in about this, and I got skittish.

    I was so exhausted by my nine months of testing for my leg pain and foot and hand tingling -- three MRIs, lumbar puncture, thousands of dollars in blood work, NCV/EMG, four biopsies -- that I am quite honestly terrified of starting up the Diagnostic Hunt again. Every time I have thought about that the past couple of days, I've actually started to tear up and cry, heart rate rising just thinking of the prospect, which is pretty unusual for me. It truly scares me to think about starting all that up again. "Just this one test" or "let's just see what this one specialist thinks" always seems to lead to another and another and another...

    But that is a useful story to hear, Marla. I will make myself remember how seeing a GI helped your daughter, especially when I'm feeling like bolting in the other direction.
    Last edited by Derrie; 08-22-2012 at 04:23 PM.

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    I'm sorry you're experiencing this pain. I'm having a very similar experience with pain in the exact location however it sounds like it's a different type of pain I get to you. Mine is very sharp almost electric shock type and radiates down the back of my knee to my ankle most of the time. It only lasts a few seconds (but those few seconds are so so painful and take my breath away). I've visited gynaecologists to and they have no answer. I haven't however been diagnosed with lupus so all of this may be irrelevant (am awaiting to see a doctor) but just wanted you to know you're not alone in mysterious abdominal pain! Had mine nearly 3 years now with no diagnosis.

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