Well, I mentioned that my Dr kind of disappeared on me, and I have to find a new Dr in a previous thread. The good thing to come from this was that I was able to get copies of all my lab results in my chart finally! Some of these labs had been done in April and I had never gotten any news except a form letter saying all results were normal except low vitamin D. Turns out they weren't all normal!
WBC count, RBC count, Hemoglobin, Lymphocytes, potassium, BUN and BUN/Creatinine ratio, and T4 were all low!! And my MCH was high. Not sure what that means, but I am going to look it up. ANA and anti-ds DNA were negative. Although those were done a few months ago before my photosensitivity kicked in, so I'm curious to see what they were be if tested again since I've just been getting new symptoms coming out of the woodwork. Maybe it will take some time for any of the antibodies to show up?
I guess it is reassuring to know that there is for sure something going on. I still think Lupus, but now I wonder about my thyroid since my T4 was low, but my TSH was still low, so something odd going on there. And there is hashimoto's in the family. So now I can add this to my list of symptoms and take these results with me to my rheumy appointments next month (and the endo next week).
I know I shouldn't try to diagnose myself, but so far it is just adding up to look more and more like Lupus. I just want to get to the bottom of things so I can get treated and start feeling better! Going by the criteria list, does it look like Lupus?
This is what I have from the 11 criteria
-maybe kidney problems? protein and blood in urine off and on, lots of issues with stones, urine sediment, etc
-possible serositis. (stabbing chest pain that is worse when taking a deep breath)
Add on the new allergy to Bactrim, fatigue, hair loss, temp at 99-100 more days than not lately (and I typically ran around 97.8 or so), brain fog, possible vasculitis, possible raynaud's, etc, etc, etc,
So my question would be if they say it's not Lupus because I don't have a positive ANA, what in the world could act so much like it? Including the butterfly rash and photosensitivity?