I am so sorry you are having a tough time. It is really scary when things happen and you don't know why. It is especially scary when things affects your breathing. I have never experienced something like that but I am sure someone will come forward to help with these issues. I do have asthma that developed over the last few years because of the lupus affecting my lungs and my joints do swell but the itching is throwing me off. I am very anxious to hear what the doctor has to say after you talk to him!!!!
We all understand about the feeling sick but nothing coming back in lab work that helps diagnose us. Most of us have experienced that a time or two. It is hard when you feel so bad but everything on the inside looks right. The one piece of advice I can give you is to be your own advocate. If you feel bad you push for them to help yo figure things out so you feel better. This can be a long process but once we finally receive some relief it will make it worth it. You made need to get a second, third, fourth and so on opinions and that is ok.
The good part, you found us and everyone here is amazing and you are never alone. Someone will always be able to help you through the issues you encounter and the support here is amazing! You will truly meet people who have went thought the same thing and that helps soooooooo much!
Please update us once you hear from the doctor and remember, we are here to listen!
As I grow to understand life less and less,
I learn to love it more and more.
Age 29, Lupus for last 7 years
Medications: Methotrexate, Lyrica, Celebrex, Flexeril, Theophylline, Bactrim, Xopenex, Lisinopril, Ultram