Results 1 to 7 of 7

Thread: Hi, my name is Lori

  1. #1
    Join Date
    Jul 2012
    Location
    San Diego area
    Posts
    1
    Thanks
    0
    Thanked 1 Time in 1 Post

    Default Hi, my name is Lori

    I have had lupus for about 4 years. I am married and have 2 boys 15, and 18. I am looking for people that know what I am going through. Theres no way of making myself look on the outside exactly what i am feeling in the inside. Even my rhuematologist came in the other day and said, you" look good". I know I will find people on this WHL site that understands what I am talking about

  2. The Following User Says Thank You to locutting For This Useful Post:

    Saysusie (07-31-2012)

  3. #2
    Join Date
    May 2010
    Posts
    980
    Thanks
    57
    Thanked 310 Times in 251 Posts

    Default

    Oh yeah. We've got two boys, 13 & almost 10 (less than 2 weeks). I can't hardly even play catch with them. I make it to work, and drag myself home everyday. Only 4 years to retirement... Ya try to keep a smile on your face and be cheerful about it, feel like $#!+ when you go in and everyone says "you're looking great!"... part of life - lol

    Anyway, welcome to the forums. Check out the "stickies" in each section, browse around, ask questions, vent, say "Hey!" whenever. Great bunch of folks here, and great mods too (gotta butter 'em up too, ya know?)
    "There but for the grace of God, go I."
    "... His mercy endureth for ever."

  4. #3
    Join Date
    Nov 2008
    Location
    hervey bay queensland australia
    Posts
    1,144
    Thanks
    151
    Thanked 207 Times in 176 Posts

    Default

    welcome whl i 3 children 25 boy 24 girl and 16 year old girl she is the one that finds it hard as i cannot do as much with her as i did i was told 5 years ago i had lupus it is hard onyou and your family we are here to support you hugs .

  5. #4
    Join Date
    Dec 2008
    Location
    Phoenix, Arizona
    Posts
    1,013
    Thanks
    0
    Thanked 22 Times in 19 Posts

    Default

    I do not have any children but I can tell you I know you feel when it comes to the outside matching the inside. Sometimes I think it would be better if we did look as bad as we feel. Friends, family and doctors wouldn't question us at all!!!!! I am happy you found all of us and I know you will receive lots of wonderful information, new friends to laugh and cry with and just support from your fellow Lupies!!!!!
    As I grow to understand life less and less,
    I learn to love it more and more.

    Age 29, Lupus for last 7 years

    Medications: Methotrexate, Lyrica, Celebrex, Flexeril, Theophylline, Bactrim, Xopenex, Lisinopril, Ultram

  6. #5
    Join Date
    Mar 2011
    Location
    pinjarra, western australia
    Posts
    2,940
    Blog Entries
    1
    Thanks
    1,403
    Thanked 1,631 Times in 1,118 Posts

    Default

    hi lori and welcome.

    i have had trouble explaining to people how i feel.
    i am a male who used to work as a fitter in the mines in australia.
    i now am that sore all the time i have had to retire on the disability pension.

    one of the things that i find helpful is
    http://notdoneliving.net/openletter/cfsfibro

  7. The Following User Says Thank You to steve.b For This Useful Post:

    Saysusie (07-31-2012)

  8. #6
    tgal's Avatar
    tgal is offline Super Moderator Super ModeratorEmperor of the Solar System
    Join Date
    Jan 2010
    Location
    Houston, Texas
    Posts
    4,521
    Thanks
    1,547
    Thanked 1,741 Times in 1,211 Posts

    Default

    Hi and welcome to WHL! Yes, we understand exactly what you are talking about. There is even a website called "butyoudontlooksick.com" because this is such a big issue.

    We are glad you found us and decided to join our WHL family. I look forward to getting to know you
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







  9. The Following User Says Thank You to tgal For This Useful Post:

    Saysusie (07-31-2012)

  10. #7
    Join Date
    May 2007
    Location
    Seaside, Ca.
    Posts
    3,871
    Thanks
    196
    Thanked 948 Times in 732 Posts

    Default

    Hi Lori,
    Welcome to WHL. I was lucky - my five kids were all raised by the time I started having symptoms of AI diseases. However, I feel your pain.
    I have grandkids, and it's frustrating to not be able to do things with them. I have problems with balance and walking, so I'm frustrated that I can no longer carry a baby across a room - and I will be a Grandma for the fourth time this fall, but I hate the fact that I won't be able to carry her around or help with her very much.
    I also had to give up a teaching job that I loved because my symptoms were keeping me from being the sort of teacher that my students needed me to be.
    You will find lots of supportive people here, and you are always welcome when you need to vent.
    Hugs,
    Marla

  11. The Following User Says Thank You to magistramarla For This Useful Post:

    Saysusie (07-31-2012)

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •