Everything came back.
After feeling awesome for over three weeks on prednisone,now all hell is breaking loose in my body. I had to taper by my doctors orders. As soon as I hit 4 mg, all my symptoms and pain started all over. Now I am completely off the pred.
Yesterday afternoon I had my first ocular migraine, I also had my first really bad bout of muscle pain. This morning I got up with a huge dose of morning stiffness and back pain, so bad, I couldn't stand up straight and walked bend foreward, like a grandma. My back got a little better with Mobic an anti inflammatory. All this was gone, when I was on the pred.
Before the pred. all fingers on my right hand were swollen, had hard bumps on the knuckles and they hurt very bad. With the pred. the bumps were gone, so was the swelling and the pain. Now it is all as bad as it was before. BTW, the rheumy thought, that those bumps on my fingers, were ganglion cysts, but now he knows, that it is either from the lupus or from the RA.
Alot of my muscles and joints are hurting, the pain level is at 5-6.
The third day, after starting the pred. I told my husband, " today is first day in six years, that I am not in any pain". He is Mr. Macho, but that brought tears to his eyes. He was so happy for me.
A med like prednisone would be nice, if there weren't all those bad side effects.
I may have been dealt a bad hand, but at least I'm still playing with a full deck. ( most of the time anyway).