You have made my day!!!!!! I just posted in Laurie's Lounge about the difficulty I am having and it is just like you! My blood work has come back stable and shows no activity at this time and I know that is great BUT my joints on my fingers ares till swollen and the pain is soooooooo bad! It is frustrating when they can not see what hurts us so much! There are a few indicators that did show up last time but they had nothing to with my Lupus. You know what really hit home for me about your story.........I was an accountant for the State of Arizona. I missed more work that I actually worked because I was sick all the time! You would think I licked door knobs that's how sick I would get! I am on methotrexate and that does lower my ability to fight off infections but come on............one after the other is exhausting! I am on short term disability so we can get everything under control. Did you stop working???? I hope you did so that you can allow your body to rest when it needs to.
On to the antidepressants. I am on one. I fought and fought my doctor on this but in the end I agreed to try it and I do have to admit mine is mild and it actually has helped with the imbalance that most of can experience. I did not have really any side effects and so the transition was easier than I had expected. I also say a therapist when I first got sick. Again, she taught me coping mechanisms I could use when I was not feeling good. I have to say the experience was good and I would recommend it to anyone.
As far as it just being in your head..............no. Do not let anyone in the medical profession make you feel bad because you are in pain. Do not let them tell you that they can not help. If your current doctor is saying that, go find another one. Someone will listen and someone will help it just takes time finding the one doctor who wants to invest their time and knowledge into you and your disease. You should never feel bad for feeling bad! It is not in your head and it is real and we will all be here to support you on the journey of finding some relief. Just rest as much as possible and start looking for another doctor who may be able to help. Remember, you are never alone!
As I grow to understand life less and less,
I learn to love it more and more.
Age 29, Lupus for last 7 years
Medications: Methotrexate, Lyrica, Celebrex, Flexeril, Theophylline, Bactrim, Xopenex, Lisinopril, Ultram