I completely understand what your talking about. And thank you Derrie for all your advice! I am newly diagnosed and although I have had all of these symptoms and felt this way for a while now, I am so aware of my symptoms and constantly evaluating myself.
This past Saturday I was feeling horrible. I had the kind of fatigue that makes you feel like you are trying to move while in a wind tunnel. Every motion requires a great deal of strength. I was frustrated because it was a beautiful day out and there were errands that I needed to run. After sitting on the couch for a good amount of the day, my boyfriend finally convinced me to go on a walk. Although I was exhausted and didn't think that I could physically walk, I went and I actually felt a lot better. It helped that I was distracted. I wasn't sitting on the couch and dwelling on not feeling well. So, I get why you feel fine at work and then crash later in the day. I like the idea of a journal. It might also be a good idea to write not only what's wrong, but to note some positive affirmations too. As well all know, thinking positively creates a positive outcome (it's just so much easier to be negative! haa)
Lupus, Secondary Raynaud's Phenomenon, Pernio (Chilblains)