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Thread: Is a low pain tolerance or sensitivity to touch lupus related?

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    Default Is a low pain tolerance or sensitivity to touch lupus related?

    Hi all,

    My sister has just been diagnosed with systemic lupus. We don't know how long she's actually had it though.

    Ever since about 3 years ago, she has had an abnormal sensitivity to getting hit. For example, If I were to playfully hit her (a light bump or poke in the arm--not hard enough to hurt anyone in my opinion) it would cause her pain.

    Another example: one time I opened the refrigerator door and it hit her in the shoulder and it seemed like it hurt her way more than it should of. She also gets bruised easily from our 20 lb dog jumping up on her legs wanting pets.

    Just wondering if this sensitivity to touch or abnormally low pain threshold is a result of her lupus or not.

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    I dunno if it's autoimmune-related or not, but I have always bruised easily and been a big weenie with any kind of pain. :-P

    Sorry she's sick!

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    I stand to be corrected by some of the female members, but isn't the easy bruising a possible symptom of low iron levels?

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    hi mac,
    and welcome.

    yes pain sensativity can be lupus related.
    different people show different symptoms of lupus.
    this is one of the reasons it can be so hard to diagonse.

    but if lupus is effecting the muscles, they will become inflamed.
    they will be very sensitive.

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    Quote Originally Posted by forty2 View Post
    I stand to be corrected by some of the female members, but isn't the easy bruising a possible symptom of low iron levels?
    In our family we joke it's a symptom of VPPS (Very Pale Person Syndrome)....we're kinda Scottish that way... :-P
    And yes, it can be a symptom of all kinds of things - it's important to get tested - but sometimes people just bruise easily - or like me are so pale you just SEE it easily.

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    Hello Mac!!!

    Welcome to WHL!

    I agree with Steve in yes pain sensativity can be lupus related.
    different people show different symptoms of lupus.
    For example: I have Fibromyalgia and can be quite tender and I find when Im poked on my side it can hurt for hours even if it was just a playful poke...

    I find in the last couple years my pain threshold has gotten stronger but there are days when i bumb into the wall and it feels like I was just hit by a car

    AmandaPanda
    "We're all in the same game, just different levels. Dealing with the same hell, just different devils.

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    Quote Originally Posted by SleepyInSeattle View Post
    In our family we joke it's a symptom of VPPS (Very Pale Person Syndrome)....we're kinda Scottish that way... :-P
    And yes, it can be a symptom of all kinds of things - it's important to get tested - but sometimes people just bruise easily - or like me are so pale you just SEE it easily.
    That just made my morning!!!

    Oh and I know sometimes I can't even have people touch me, like a hug, because it's so painful. Although I have always been a bit more tolerate with pain lupus can sometimes make us a bit sensitive to things.
    Last edited by Mica; 05-16-2012 at 10:37 AM.

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    SleepyInSeattle (05-16-2012)

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    I have co-workers, that when they walk behind my chair, they stop and massage my shoulder or just run their fingers over my spine, it hurts so much, that I want to scream.
    I told a couple of them not to do it, because it hurts, but they either don't believe me or don't care. It's so bad, I want to slap them.
    Even my poor husband got yelled at, when he tried to give me a massage.
    And yes, I bruise easy too.
    You can look at me, but don't touch me.

    Debbie
    I may have been dealt a bad hand, but at least I'm still playing with a full deck. ( most of the time anyway).

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    I have really, really sever fibro to the extent that even having one of my small cats laying on my lap can cause agony after about five minutes. And, honestly, I don't even want to be in a romantic relationship for fear that intimate moments would be far too painful. My son even knows that he can only gently hold my hand during the scary parts of a movie or sharing a high five when something is really funny. I love to hug but my close friends know that even hugs have to be very gentle. But I sure say "I love you!" a lot! I may not be able to physically love on my friends, but they do know they are loved!

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    I also have severe Fibromyalgia, and associate most of my "avoid tender touches" to the fms. Any touching of my pressure points will feel like I have been hit with a 2 x 4 board. I just cringe, and bear the pain....
    Phyllis

    share a smile today

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