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Thread: Hi all Im back

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    Default Hi all Im back

    Hi guys
    well as the title says im back after several months of questions tests and more tests it has been confirmed Alan definately has Lupus not shunt nephritis!!! However as a result of all the tests they have done they have discovered he has an enlarged right side of his heart.So we are going for tests now at Cardiology to find out if this is due to Lupus or not!!! He is still having seizures more or less on a daily basis although not as many as he was having some days he can have 11 some just 2 or 3. Since I have been last on he has also been diagnosed with steroid induced diabetes! Insulin dependant. So the next plan of action is to start 6 month course of chemotherapy he already had 3 infusions which didnt seem to be helping and his kidney function has dropped to 26% so not so good on that front.Hope you are all well .
    Take Care Mary xxx

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    welcome home.
    i am glad you have come back.
    i was worried about both of you.

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    MaryS42 (02-21-2012)

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    I am so glad that you are back, but I am sorry to hear that Alan has been diagnosed with Lupus. As you said, however, it was a good thing that they discovered the issue with his heart very early that treatment can be started in order to reduce the enlargement,
    Now, he also has to deal withe diabetes and insulin..it has been a difficult time since we last heard from you. As you know, we are always here for you and I am keeping you and Alan in my prayers.

    Peace and Blessings
    Namaste
    Saysusie
    Look For The Good and Praise It!

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    MaryS42 (02-21-2012)

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    Thankyou both for the welcome back its good to be back these past 6 or so months of not knowing if it was Lupus or Shunt nephritis has been hell to say the least.The deterioration in Alan has been rapid however that could be down to having no Lupus treatment while they carried out all the tests which is why they are keen to start chemotherapy as soon as possible. We seen yet another neurologist yesterday who still says the seizures are being brought on by trauma and stress and we've certainly had our fair share of those but there again I should be having them if its stress!!! My dad has come through his cancer treatment however his dementia is getting worse as is my mums I am also going into hospital on Thursday to have tests done for possible bowel cancer!!! next week i have to go for a mamogram as i have a family history of breast cancer (my sister died age 37yrs) . On a lighter note I now have respite workers who come and take care of Alan for me for 4hrs twice a week and as of next week it'll be 8hrs twice weekly this has been a godsend and the respite workers are lovely and Alan gets on well with them which is good.
    Take care all M.x.

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    How are things with you Steve have you been keeping well?

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    Welcome back Mary. I am so glad that there has been progress with your husband. It sounds like there is still a long way to go but at least you are over the first hurdle. Please keep us posted
    Mari

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    Quote Originally Posted by MaryS42 View Post
    How are things with you Steve have you been keeping well?
    i will send you a message,

    i have had my share of "fun"

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    Hi Guys I am looking for advice if any of you can help! Do any of you know if trauma can trigger Lupus as we have looked into it all and even Alans Rheumi has said he does not pose as a typical lupus patient in his words Alan is male not asian has only had 1 positive ANA in 5yrs has no family history of Lupus. However I have been reading that things such as Trauma,Stress,Injury and Infection can cause Lupus.As most of you know Alan was involved in a motorcycle accident in Nov 06 he sustained alot of trauma and injury(broken neck in 2 places,smashed left leg,tore a hole in aorta,broke both hands ) 6 months later he developed septicemia and nearlly died it was during this time that Alan tested Ana positive this is the only time he has tested positive.Basically Alans kidney specialist is trying to tell us Alan was always going to develop Lupus regardless of whether he had this accident or not we disagree as Alan was a big fit healthy man heavily into sports etc never off work ill etc and only after this accident did he develop any problems any advice greatly received. Thanks Mary

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    Quote Originally Posted by MaryS42 View Post
    Hi Guys I am looking for advice if any of you can help! Do any of you know if trauma can trigger Lupus as we have looked into it all and even Alans Rheumi has said he does not pose as a typical lupus patient in his words Alan is male not asian has only had 1 positive ANA in 5yrs has no family history of Lupus. However I have been reading that things such as Trauma,Stress,Injury and Infection can cause Lupus.As most of you know Alan was involved in a motorcycle accident in Nov 06 he sustained alot of trauma and injury(broken neck in 2 places,smashed left leg,tore a hole in aorta,broke both hands ) 6 months later he developed septicemia and nearlly died it was during this time that Alan tested Ana positive this is the only time he has tested positive.Basically Alans kidney specialist is trying to tell us Alan was always going to develop Lupus regardless of whether he had this accident or not we disagree as Alan was a big fit healthy man heavily into sports etc never off work ill etc and only after this accident did he develop any problems any advice greatly received. Thanks Mary
    Yes, trauma can trigger AI diseases such as Lupus. It actually takes a trigger of some kind and, although we are not sure what all the triggers are, we do know that trauma is one of them
    Mari

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    ~Winston Churchill~







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    mary, as mari has said, lupus usually requires some form of trigger to set it off.

    being fit and healthy does not exclude people from lupus.

    other males i know of on this forum, have been healthy and have lupus.
    i was a heavy duty mechanic, working on big mining machinery.
    rob is ex military, his fitness was extreme.
    there is a current member (i cannot remember his name), who posted about there fitness level as a motivation to others.

    i know this may not be the news you wanted to hear, but it is a fact that extrememly fit people has developed lupus.
    the doctor is missguided by saying alan is male and not asian, therefore he is not a typical lupus patient.
    there is tens of thousand of americans with lupus. they are not asian either.
    about 10 % of all lupus patients are male.
    10% is typical.

    many people increase there stress levels trying to find a reason for there lupus.
    unfortunatelly it is not always possible.
    please accept my cyber hug.
    and please do not worry about what you cannot solve.

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