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Thread: Lupus Profundis

  1. #21
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    That is so sweet of your husband. And you're right-- the little delights should always be appreciated!

    Good luck at the hospital!

  2. The Following User Says Thank You to Derrie For This Useful Post:

    Desleywr (06-06-2012)

  3. #22
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    Hey Desley,
    I'm thinking of you today. I hope that things went well.
    Hugs,
    Marla

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    Desleywr (06-06-2012)

  5. #23
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    Hope you're doing well!

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    Desleywr (06-06-2012)

  7. #24
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    Well endoscopy done no further changes which is good, stomach still very swolen, found a new fat necrosis in the breast, lump in the stomach, saw dermatologist she not sure, gastr Dr has put me on colchicine in the treatment of mesenteric panniculitis, then surgeon is to see me in the morning with gastro seeing at lunch and he hopes to test this drug and see if it controls it before going into surgery. If this drug doesn't work in the next three to four weeks, then he will try stronger anti immune drugs. This he will try for 3mths then new ct then see if they are going in for the full zipper!

    Thanks for all the support. All I hope is this extended stomach gets some relief.

    Here is a paper for those who want to read further. On mesenteric panniculitis.
    http://www.saudijgastro.com/article....ulast=Fasoulas
    Last edited by Desleywr; 06-07-2012 at 04:16 AM.
    Desley
    For every dark cloud there is a silver lining!
    Diagnosed: Lupus; mesenteric panniculitis; fat nacrosis;

  8. #25
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    Next morning, I feel some what eased as this new drug has sent me to the toilet 9 times in past 24 hrs which has givenme much relief at least. Stomach still swollen but not so much discomfort. The surgeon has turned out to be the wrong type as he he only does bowl and I am to see another surgeonnext week. No side effects yet nice being told if things go wrong with the drug it old kill me, so I have to be very wary of side effects. That's all for now!
    Desley
    For every dark cloud there is a silver lining!
    Diagnosed: Lupus; mesenteric panniculitis; fat nacrosis;

  9. #26
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    I feel that I should put this up under a new thread as the diag has a different name for others who may have the same. So starting new thread colchicine in the treatment of mesenteric panniculitis. See you there.
    Desley
    For every dark cloud there is a silver lining!
    Diagnosed: Lupus; mesenteric panniculitis; fat nacrosis;

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