Page 2 of 2 FirstFirst 12
Results 11 to 17 of 17

Thread: plaquenil

  1. #11
    Join Date
    Mar 2012
    Location
    Ohio
    Posts
    31
    Thanks
    1
    Thanked 5 Times in 4 Posts

    Default

    Planqunil takes time so even though its hard, be patient, things will improve. My personal experience was arouind 6 months before I noticed a huge diffenece in how I felt day to day. The side effects I had fell away around 2 months into taking it. I hope you feel better soon.

    Hugs

  2. The Following 2 Users Say Thank You to runnergirl68 For This Useful Post:

    Koilover512 (01-19-2013), tgal (05-17-2012)

  3. #12
    Join Date
    Dec 2011
    Posts
    15
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    I was definitely diagnosed this month by my RA, Dr Morris. He started me on Plaquil. It has only been two days since I began it, but have had no side effects. Hooray!

  4. #13
    Join Date
    Dec 2012
    Location
    los angeles
    Posts
    14
    Thanks
    0
    Thanked 1 Time in 1 Post

    Default

    wait. is getting antsy at night/restless after you're tired a common thing with lupus? i've been like that a loooot lately.
    thanks so much.

  5. #14
    tgal's Avatar
    tgal is offline Super Moderator Super ModeratorEmperor of the Solar System
    Join Date
    Jan 2010
    Location
    Houston, Texas
    Posts
    4,526
    Thanks
    1,548
    Thanked 1,742 Times in 1,211 Posts

    Default

    Many of us have difficulty sleeping no matter how tired we are. It can be a med thing but it can also be a Lupus/ AI thing. You will see tons of threads on here about it
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







  6. #15
    Join Date
    Dec 2012
    Location
    los angeles
    Posts
    14
    Thanks
    0
    Thanked 1 Time in 1 Post

    Default

    good to know. thank you. it's so incredible being on here and realizing how many things i go through are just common things that everyone is going through. until now i've felt very alone in all of this.

  7. #16
    Join Date
    May 2007
    Location
    Seaside, Ca.
    Posts
    3,871
    Thanks
    196
    Thanked 948 Times in 732 Posts

    Default

    smw,
    I went through years of not sleeping well and getting up every two hours to go to the bathroom.
    I've only recently found a doc who has managed to get both things under control.
    I'm now on Ditropan for the frequent urination, even though it does make me have more dryness symptoms, so I have to take more Pilocarpine for that.
    I'm also taking neurontin for nerve pain, and Oh Goody! now I sleep well.
    Sometimes it just takes finding the right doc who will work with you on finding the right meds.
    Hugs,
    Marla

  8. #17
    Join Date
    May 2010
    Posts
    980
    Thanks
    57
    Thanked 310 Times in 251 Posts

    Default

    Plaq can cause me some "weirdness", I'll call it, when I'm trying to get to sleep. My sister "hallucinated" she said. For me, it's very vivid, "strange" dreams, some that came on before being fully asleep. I would start out feeling "uncomfortable" those evenings. What I've found that has helped me immensely in that regard is to not take my 2nd dose so late. I do my first dose about 1 1/2 hrs after waking up. I do my thyroid meds, go to work, eat some breakfast, then do my plaq (and a bunch of others). I take my 2nd dose with a light snack, usually around 130 to 200 in the afternoon, but I have gorfotten it ocassionally, and have taken it as late as 400 pm with not too bad of effect. Ask you doc though, about changing your routine. I don't have weird dreams usually anymore, less "uncomfortableness" in the evening, but the insomnia comes visits all too often still... oh well. I am still getting small improvements in joint inflammation and pain reduction, in spite of having some increased photosensitivity lately (from whatever cause).
    "There but for the grace of God, go I."
    "... His mercy endureth for ever."

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •