I have never been so frustrated in my life. I completely understand feeling stuck in the middle of proving that I am sick and not wanting to completely become absorbed with my sickness. It's almost impossible. I'm afraid it's going to take me running myself into the ground until people truly understand what I am going through.
As for Lupus Awareness Month, I was reading that May 18th is Put on Purple day. So, at the least I am going to wear purple and also ask my loved ones too as well. It may not be the most outward support, but at least I will know.
Lupus, Secondary Raynaud's Phenomenon, Pernio (Chilblains)