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Thread: Update on Liver, MTX, etc.

  1. #1
    Join Date
    Sep 2008
    Thanked 4 Times in 4 Posts

    Lightbulb Update on Liver, MTX, etc.

    Hi all. I decided to start a new post instead of posting in the 3 or 4 others I have had floating around recently. (LOL)

    First off, The densities/Tumors in my liver are benign vascular tumors called "Hemangioma's" They are small but in reality they can't do anything for them so hopefully they won't grow or I won't get anymore etc. (LOL).....sorry have to laugh otherwise it's a let down!...ya know how it goes being a Lupie....

    As for the MTX treatment, well starting my third week I'm not feeling any relief yet and still experiencing side effects. Last night I started having Tachycardia for no reason(HR-90bpm)accompanied by shakiness, heart racing, nausea, dizziness, etc. I had not taken my night meds at that point and had already had dinner. Anyway, I decided to take a shower and that just made it worse. I got out with this bright red rash on my face which hasn't been this bad in a while( See attachment) and everything burned and was stiff(am I now allergic to water??!...LOL...) Joint pain and weakness/fatigue followed shortly after. So, I emailed my rheumy because she was supposed to increase my MTX dose last night but decided to try and get a handle on my side effects from it first(another option may be the injection although I've been told it's more potent and absorbs quicker than the pills so it may increase side effects??) So far I get the following from taking MTX:
    -some nausea,- shakiness, -weakness/fatigue, -chills/flu like feeling, -brain fog/memory issues,headaches, loss of appetite(almost none at all to where I don't realize I need to drink let alone eat),diarrhea, here goes the brain fog Ghost Hunters would say: "On to the next!" haha

    I don't even remember where I was going with this but I guess I just wanted to update everyone and see how you are doing too! I hope this finds you well. Take care and God Bless!

    - Lupie Ladybug
    Attached Images Attached Images
    *LadyBug*- Epilepsy Dx: 2003 & UCTD w/SLE features Dx: 2009 SLE/Lupus Dx: May 12th 2011 Secondary Adrenal Insufficiency Dx: 2012--Current Meds:
    Plaquenil-200mg 2x/day
    Hydrocortisone 10mg A.M. & 10mg 4P.M.
    Keppra-1250mg 2x/day
    Prenatal Vitamin-1x/day
    Protonix 40mg 1x/day
    Flonase 50mcg 2 sprays each 1x/day

    Wanna know my story, just ask!

    *MissLadyBug* <3

  2. #2
    Join Date
    Mar 2011
    pinjarra, western australia
    Blog Entries
    Thanked 1,844 Times in 1,279 Posts


    i am hearing you.
    hopefully you get it sorted.

    i have not used the injections....
    but from what i have heard...
    it helps with quite a few of your side effects.
    hopefully a few other members who have injections can help explain the effects.

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