I'm new to this site and really scared about the symptoms I've been having lately. Does anyone else suffer from "send you to the ER" headaches, depression, memory loss (big chunks of days), anxiety? I swear it feels like my brain is about to burst. Last week that happened and the next thing I know I'm coming in and out of consciousness in the hospital. Apparently I was awake and talking but have very little memory of what I said or did, tho I was told I was slightly incoherent and would literally fall asleep sitting up in mid-sentence. I'm between rheumatologists right now, but my new one can't get me in until June! I'm feeling horrible pain in head and joints right now and am terrified of having another episode like last week. Has anyone else experienced anything like this? Is the lupus affecting my brain? I have not been able to work and can barely function to take care of my family. Please help!
The Following User Says Thank You to tgal For This Useful Post:
i am sorry to hear your issues.
i too have my lupus effect my brain.
it is not as severe as yours, but i went to a neurologist to check it out.
i agree with tgal......
it is worth getting a specialist to find out what is going on.
Welcome. I'm sorry you are having to deal with all this. One thing jumped out at me after reading a couple of your posts.
Last year, I was experiencing headaches so severe that I was ending up in the ER. The pain was just totally debilitating
making me just crumple to the floor. The worst pain I have ever felt, and I've experienced intense pain before.
I was diagnosed with a condition called Trigeminal Neuralgia. After a few more flare-ups, my neurologist was able to put
me on an effective med that has at this point eliminated the problem and the pain associated with it.
You might want to ask your Dr. or other specialist if they think T.N. might be what's causing your pain. If by chance
you do have T.N., there are some really effective meds and treatments for it.
I hope you find some answers soon, and get the pain under control,
The Following User Says Thank You to rob For This Useful Post:
Hi and welcome.
I agree you need to see a doctor regarding the headaches. Mine are signs I may be stroking. A neurologist appointment might be a good idea. A rheumy doesn't always has the answers we need to hear
Welcome to WHL. As you can see already, many of us have some neurological issues with our AI diseases. Mine causes the muscles in my legs to be in constant spasm. I've also had the occasional "Lupus Migraine". Those are really miserable days!
I hope that you can find a good neuro soon and get some answers.