Update from my rheumy visit yesterday.
As alot of you know, I had to stop MTX shots, a few months ago, because of high liver enzymes. Well, even
without the MTX, the enzymes are high and all over the place.
About three months ago, my rheumy send me to a gastro doctor, for my liver. That doctor pushed a little on my upper abdomen and said, that I have to get a upper GI(or whatever it's called, when they shove this tube down your throat into your stomach). Well I went home and thought about it and decided, since there is nothing wrong with my stomach, I am not going to pay this huge co-pay, so I didn't have it done.
My rheumy asked me about the gastro visit yesterday and when I told him, what he wanted to do, my rheumy said, " that is insane, the gastro just wants to make money". I was shocked to hear that, even though that is what I thought as well, but hearing it from another doctor, wow.
So here is the story. My rheumy is very afraid to give me ANY meds, until the liver thing has been resolved, because ALL meds hurt the liver in some way.
If you have a healthy liver, it's ok, but if your liver is damaged, you can't take these meds.
So the next step is, he will talk to the gastro and tell him, that the ONLY thing I need is a liver biopsy.
That scared the heck out of me.
He thinks that I have autoimmune hepatitis ( not contagous), it means the lupus is attacking my liver.
I know Mari, you will say, " don't borrow stress", but I am very scared.
I am going to have a huge blood test done today. The next step is the liver biopsy.
He also dx me officially with sjoegrens, very dry eyes and dry mouth.
Last edited by debbie-b; 03-15-2012 at 04:33 AM.
Reason: added something
I may have been dealt a bad hand, but at least I'm still playing with a full deck. ( most of the time anyway).