There have been quite a few threads on this subject lately. Many partners seem to have a rough time accepting and understanding chronic illnesses.
Would he agree to attending a doctor appointment with you? It might help to hear it from the doc.
Piers Morgan just interviewed Nick Cannon on CNN. You might be able to find the video online for him to see. Nick mentioned that his wife, Mariah Carey, is
extremely supportive. She has educated herself about Lupus, and he laughingly called her "Dr. Carey".
My hubby is always doing research and sending it to me. That's how he feels that he's helping.
There is also a great site with a story called The Spoon Theory. I don't have the link, but I'm sure that someone will come along and give it to you. It has helped many to understand what we are going through.
Good luck with this. I'm sure that others will be along with more advice.