Suspect, but not diagnosed.... I have questions
Okay, I've been a suspect for lupus since 1998. That's also the last time I went to a rheumetologist (sp?). I had been diagnosed previously as having an "autimmune disorder of unknown origin". In 1998 when I saw the rheumetologist and he strongly suspected lupus and recommended I begin steroids. I wasn't ready for that. I was thin at the time and didn't relish the thought of the effects on my body steroids would have. All these years I've been meaning to go back and just never did. Part of it was because my doctor often said the cause of my complaints were "psychosomatic" which is her way of saying I'm nuts. It didn't matter that there was positive test results that showed otherwise. She would say that the mind is a very powerful thing and depression can make us physically ill. I feel she feels that I am my mother, who is bipolar, and treats us both the same. Because of this, I quit going to the doctor all together until I got pregnant with my son, Jamie. I had a difficult time getting pregnant and suffered several miscarriages before having him (due to PCOS). I had a difficult pregnancy which ended in months of bedrest (due to incompetent cervix). After giving birth, my health seemed to have deteriorated a lot. At first I passed it off as being weak due to my prolonged bedrest. Soon I wasn't able to pretend things were okay. I ended up at the ER with pancreatitis one night. I had acute pancreatitis when I was 15 and no cause had been determined. After so many years I didn't think I would ever have it again. Another night I went to the ER thinking I had pancreatitis and it ended up being swollen lymph nodes in my stomach. That was probably the most painful thing I have ever experienced. The doctor in the ER seemed to think this was rather serious. She talked to my doctor and I had an appointment first thing in the morning. All that came out of that appointment was a lot of pain medicine, no answers.
Here are some problems I'm having...
Insomnia or conversely, long periods of excessive sleep (I know that sounds crazy)
facial discoloration (could be rosacia, too)
redness with little bumps like cold prickly bumps on chest
sun sensitivity, 10-15 minutes of sun exposure can make me experience nausea & vomiting
mild to moderate headaches
stiff, painful hands
arthritis in my back
I've tried to do some research online, but so many diseases/syndromes mimic each other or have similar symptoms. I just don't know what to think. I have PCOS and type II diabetes. Many of my symptoms can be caused by these. I went to the doctor on 4/21 and finally got some bloodwork done. None of it seems too bad. My ANA panel was 23, which is listed within normal parameters. I know I have had positive ANA panels before. It's one of the reasons that they have me listed as having an autoimmune disorder. I wish I knew what my levels have been in the past. It looks like 23 is a pretty good ANA, though. My C-reactive protein, Quant is higher than the limits, but from what I can find online is okay. It is 5.7H mg/L. This paper says 0.0-4.9 is within the limits. I don't know what Microalbum.,U,Random is, but it's high. It says mine is 23.0H and normal limits are 0.0-17.0. My white count, red count, hemoglobin, hematocrit, platelets, and neutrophils (whatever that is) are all slightly elevated. My liver enzymes (ALT(SGPT)) are elevated.
I don't know what all this means for me. My doctor says I probably have lupus and then I get these test results and it looks like my ANA and C-reactive protein levels are okay. Does that mean I don't have lupus? Does that mean it really is all in my head? Surely it all can't be. Is it stemming from something else? If anyone can make sense of all this, can you share your opinion with me?