I'm wondering if anyone has experience at the Hospital for Special Surgery in Manhattan. I am in upstate NY and my rheumatologist mentioned that he might refer me there if we can't get my pericarditis under control.
NSAIDs didn't work or high dose steroids, with colchicine and plaquenil as well. The next plan is cellcept, then referral if that doesn't work. I don't have effusion and thankfully my cardiac tests have been fine except for the pericardial rub. It is just that the pain and shortness of breath won't go away!
It looks like the HSS has a large rheumatology department with a lot of lupus studies going on. Let me know if you have anything good or bad to say about them...I would greatly appreciate it!