WELCOME - you will find a whole lot of support, wisdom, and understanding here!!!
I am really sorry you are not doing well - that sucks. But I am glad you have a diagnosis, because hopefully that means your doctors can help you treat your symptoms and get you to where you are not suffering so much. Sometimes that takes a long time - a year or more - so don't give up. And then again, things will change, and you'll have to figure it out again....it's just the way it is. These diseases are complicated, and since every individual is different, it can take a while to find a good balance of medication, lifestyle, etc....so be patient with yourself, and DON'T GIVE UP.
It's a good idea to keep a journal of your symptoms to bring to your doc when you go in. Understanding and recognizing the patterns can help to create an appropriate treatment plan. You might feel like a hypochondriac, bringing in these long lists of things, but it's your doctor's JOB to sort out what is relevant and what's not - it's your job to simply bring him/her the facts. Eventually you will learn how to be more savvy about things hopefully catch flares earlier and earlier, so HOPEFULLY you and your doc can help head them off, or at least limit their effects.
Diagnosis is not the end - it's just the beginning of understanding - and understanding often brings more effective relief - so stick with it. Some people around you will understand, and some won't...but at least now you can explain WHAT's going on....