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Thread: I'm beginning to doubt I have Lupus...

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    Default I'm beginning to doubt I have Lupus...

    My only symptoms are joint pain, fatigue and canker sores. When tested my ANAs are positive. I haven't had the malar rash or any of the other symptoms, yet my doctor thinks it is Lupus. Is it possible for it to be Lupus with so few symptoms? Could it take more time for the symptoms to appear?

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    since symptoms come and go..its entirely possible for it to be lupus with few symptoms. some people get certain symptoms and others dont. i hope you get answers

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    Quote Originally Posted by lovelyophelia View Post
    My only symptoms are joint pain, fatigue and canker sores. When tested my ANAs are positive. I haven't had the malar rash or any of the other symptoms, yet my doctor thinks it is Lupus. Is it possible for it to be Lupus with so few symptoms? Could it take more time for the symptoms to appear?
    Hi Lovelyophelia,

    I was diagnosed with SLE in 2004, and I have never had the telltale malar rash on my face, not once. Most of the time, be it a major flare or a minor one, joint pain, "lead blanket fatigue", and mouth sores are the main, and at times, only symptoms I experience. My ANA is also perpetually positive.

    I wish you didn't have the Lupus diagnosis. It sucks, but there's nothing you mention in your post that would immediately indicate in comparison to my own symptoms, that what's happening with you is not Lupus.

    Of course, I'm no doctor, and misdiagnoses do happen. If you really believe that your diagnosis is in error, by all means, get a second, or even a third opinion. At the same time, trust what your body is telling you, and trust your own judgement one way, or the other. You know your own body.

    Rob
    Last edited by rob; 03-02-2012 at 06:49 PM.

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    i also do not have the molar rash.

    but it is not really impostant what they call it.
    it is more important that they find the right meds for you.

    take care and please do not worry about the title.

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    As the others have said, not everyone gets a malar rash. For some people the extreme fatigue and joint pain is what they have. As Rob and Steve nothing you mentioned points to not having Lupus however if you are worried about that please go get another opinion. The one thing that needs to be made clear though, make sure you take your meds because if you do that you may be able to keep those as being your only symptoms
    Mari

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    ~Winston Churchill~







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    No malar rash for me, either.

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    I haven't been officially diagnosed yet, my doctor isn't comfortable to make the diagnosis so she is sending me to a rheumie who I will meet with Tuesday for the first time. It definitely either Lupus or Rheumatoid arthritis, and since I have so few symptoms of SLE I'm wondering if its RA. I would rather Lupus, since it is less likely than RA to cause deformity and affect my guitar/piano playing. I suppose I won't know until I take the tests and get the results though.

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    Quote Originally Posted by lovelyophelia View Post
    My only symptoms are joint pain, fatigue and canker sores. When tested my ANAs are positive. I haven't had the malar rash or any of the other symptoms, yet my doctor thinks it is Lupus. Is it possible for it to be Lupus with so few symptoms? Could it take more time for the symptoms to appear?
    Yes, it's most certainly possible for it to be Lupus with so few symptoms and yes it could take more time for other symptoms to appear but its also possible a doctor couldn't definitively diagnose Lupus with just those symptoms.
    Last edited by RaoulDuke; 03-10-2012 at 06:35 PM.

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    Not everyone gets all the symptoms and signs of Lupus. People may not even test ANA positive and yet still be told they have lupus. I still don't test positive for ANA but my doctor diagnosed me. I did, however, have the malar rash, fatigue, and extreme joint pain. I was diagnosed with both SLE and RA. I do test positive for scleroderma and RNP, but not ANA. I also noticed that since my diagnosis in Dec 2011, that my symptoms have become a little worse. I don't think it's psychological as the pain is significantly more intense. But, it lets up and sometimes I have good days and sometimes I am in bed. I'm just keeping my fingers crossed that I can still stay at work. I had a lot of PTO saved up so it hasn't really become an issue yet with me taking time off for feeling too much in pain. I hope you are getting the right treatments!

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