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Thread: New here looking for help :)

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  1. #1
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    Default New here looking for help :)

    The past two years I have been dealing with vast crazy symptoms that the doctors cant pinpoint to anything. I have had severe fatigue and I have a 2 year old that I have guilt about because I dont spend enough time with her because I am exhausted all the time. My joints hurt on and off I can't do much or I will be in bed for the next few days. I also have had a swollen breast it was like a whole cup size larger than the other one. i looked it up and found breast mastitis. I also have scabs all over my scalp and they are thick. I am always just feeling sick. The only thing I found that most people have when they have lupus is swelling the only swelling that I have noticed is in my breast...although my eyes are always killing me like they are gonna explode from pressure and constant migraine headaches. I also have what looks like a mild butterfly rash which comes out alot when I have a shower.... I am going to try to post the picture I have of it. I also was diagnosed with raynauds years ago. So I am gonna post the picture and please let me know if i am crazy....I have been searching the internet for my symptoms and come up with lupus or fybromyalgia or chronic fatigue syndrome. Thanks so much for your help. rash.jpgrash.jpg

  2. #2
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    hi and welcome,
    it would appear that there is some thing going on with you.
    but i am not a doctor.
    i would suggest asking for a referal to a rhuematologist.
    they are the specialist that works with auto immune disorders.

    if you have breast issues, i reccommend following up on it.
    everyone has "slightly" different sizes on each side.
    but if there is a dramatic difference, there is usually a medical reason for it.

  3. #3
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    Welcome to WHL.
    Steve is right, even though everything points to Lupus, including the rash, only a rheumatologist can make a proper diagnosis.
    You should see one asap, so that the doctor can start you on the proper meds.

    Debbie
    I may have been dealt a bad hand, but at least I'm still playing with a full deck. ( most of the time anyway).

  4. #4
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    I agree with the above statements. The mastitis is unusual though, unless you are breast feeding? I know it is common with moms who nurse when they get engorged (I had it once and it is horrible), however it's usually accompanied by flu-like symptoms, it's hot to the touch and literally rock hard. However, I do agree that you should see a rheumatologist and perhaps an obstetrician or PCP to have your breast checked out. Keep a journal of your symptoms and keep taking pictures so you can be prepared when you see the doctor.
    Graves Disease 2007, Ceilac's Disease 2008, Lupus 2012.
    "Не дай мне Бог сойти с ума."
    God, please don't blow my mind. - Aleksandr Pushkin

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