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Thread: world autoimmune arthritis day and need a moderator to let me know how to proceed.

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    Default world autoimmune arthritis day and need a moderator to let me know how to proceed.

    So. I'm not really sure if this constitutes as spam or not but I've been around this forum for quite some time and I would hope that by now it is obvious I'm not a spammer. I trust ya'll to jump on me if it is though

    I am very active in Autoimmune Arthritis advocacy - Lupus (SLE) is consisered an autoimmune arthritis disease. World Autoimmune Arthrtis Day is coming up on May 20th, 2012. The group that I volunteer with called IAAM (International Autoimmune Arthritis Movement) has been doing a public campaign to let people know what Autoimmune Arthritis is (very graphically in some ways I might add) I know some of you I have talked to and who have supported me over time have shared general frustration with how little the population seems to realize the severity of Lupus but I never took the time to mention that volunteered in advocacy for Lupus and other Autoimmune Arthritis diseases because when I initially started out I did not want people to know who I was in online forums. I have since had Cardiac bypass, chemo treatments, etc.

    Anyway. Many patients in the autoimmune arthritis world are making posters to show the world what Autoimmune Arthritis is. You can see many of them here. There are lot of lupus fighters in this group. https://www.facebook.com/WorldAutoimmuneArthritisDay

    I don't want to cause a sudden flood to the wehavelupus.com forums but I would like to let the folks there know that this incredible resource exists. Ya'll have been amazing to me over time but I would feel more comfortable if a moderator actually did the advertising for the group or let me know that it was OK to let other autoimmune (lupus) patients know that this forum is here. The online International Autoimmune Arthritis Movement facebook page has about 2400 members so I do not want to blow up www.wehavelupus.com by directing a heard unduly!!!!

    Love ya'll
    Tristan
    32 YO Wife, Mother and Advocate
    Lupus - Subclavian Bypass May of 2009. Ectopic Lentis, Scoliosis(not lupus related)
    Current medications: Aspirin, Plaquenil, multi vitamins, folic acid, Methotrexate, Tramadol PRN

    You can find me on facebook at www.facebook.com/sororenotis
    Please tell me you are from here and who you are if you add me there.

    I work full time and Leader for International Autoimmune Arthritis Movement
    http://www.iaamovement.org/

  2. The Following 3 Users Say Thank You to justomegirlindallas For This Useful Post:

    magistramarla (02-28-2012), Saysusie (02-28-2012), steve.b (02-28-2012)

  3. #2
    tgal's Avatar
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    Quote Originally Posted by justomegirlindallas View Post
    So. I'm not really sure if this constitutes as spam or not but I've been around this forum for quite some time and I would hope that by now it is obvious I'm not a spammer. I trust ya'll to jump on me if it is though

    I am very active in Autoimmune Arthritis advocacy - Lupus (SLE) is consisered an autoimmune arthritis disease. World Autoimmune Arthrtis Day is coming up on May 20th, 2012. The group that I volunteer with called IAAM (International Autoimmune Arthritis Movement) has been doing a public campaign to let people know what Autoimmune Arthritis is (very graphically in some ways I might add) I know some of you I have talked to and who have supported me over time have shared general frustration with how little the population seems to realize the severity of Lupus but I never took the time to mention that volunteered in advocacy for Lupus and other Autoimmune Arthritis diseases because when I initially started out I did not want people to know who I was in online forums. I have since had Cardiac bypass, chemo treatments, etc.

    Anyway. Many patients in the autoimmune arthritis world are making posters to show the world what Autoimmune Arthritis is. You can see many of them here. There are lot of lupus fighters in this group. https://www.facebook.com/WorldAutoimmuneArthritisDay

    I don't want to cause a sudden flood to the wehavelupus.com forums but I would like to let the folks there know that this incredible resource exists. Ya'll have been amazing to me over time but I would feel more comfortable if a moderator actually did the advertising for the group or let me know that it was OK to let other autoimmune (lupus) patients know that this forum is here. The online International Autoimmune Arthritis Movement facebook page has about 2400 members so I do not want to blow up www.wehavelupus.com by directing a heard unduly!!!!

    Love ya'll
    Tristan
    Feel free to send them our way. As you know too many feel alone in this disease and this site was designed to let them know that they are not alone. We welcome anyone that follows the rules and there is always room for another "family member".
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







  4. #3
    Saysusie's Avatar
    Saysusie is offline Super Moderator Super ModeratorEmperor of the Universe
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    Ditto to what Tgal said...

    Peace and Blessings
    Namaste
    Saysusie
    Look For The Good and Praise It!

  5. #4
    rob is offline Super Moderator Super ModeratorEmperor of the World
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    Sounds good to me too!

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