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Thread: New to board and beginning benlysta tomorrow

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    Default New to board and beginning benlysta tomorrow

    hi,
    I have had Lupus for over 17 years now and beginning Benlysta tomorrow. Anyone on it?

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    hi and welcome.
    one of our members slim has started a blog on there benlysta.

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    The user is slim. I would find the blog but I am here on my phone and it is hard to search. Good luck to you!
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    rob is offline Super Moderator Super ModeratorEmperor of the World
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    Quote Originally Posted by lhuntd View Post
    hi,
    I have had Lupus for over 17 years now and beginning Benlysta tomorrow. Anyone on it?
    Here you go, Slim's Benlysta Blog Entries-

    http://forum.wehavelupus.com/entry.p...ysta-treatment

    http://forum.wehavelupus.com/entry.p...nlysta-round-2

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    I have had three rounds of Benlysta thus far. First round had me sound asleep for 3 days. Likely from the Benadryl.
    I can tell a slight improvement in terms of my malar rash. It had been severe every day before Benlysta, and now I only have it a couple of times a week. I am patiently waiting for improvement in the joint & muscle pain, overwhelming fatigue, and cognition issues.

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    Thanks south for this information! It is very helpful to those thinking of trying it!
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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