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Thread: beyond frustrated!!

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    Default beyond frustrated!!

    dont know if this is the right place to post or not..my health insurance sucks!! i live in south carolina and am having a very hard time finding a rehmatologist who accepts my insurance..i see a nurse practitioner in a large office, now they have 2 real doctors there but they arent experienced in lupus. i want to treat my condition the best way i can. she only offered me prednisone and i feel there are other things that can help me. i feel she doesnt have enough experience with lupus and will miss something important. i have high cholesterol and my blood pressure was high,but she didnt want to start anything new on me. is it possible to treat lupus without going to a rehumatologist? sorry for the typos lol but fingers are killing me!! im searching for at least a new doctor this place i go to now is huge and i just feel im not getting thr best care

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    i am sorry you are being treated like a number.

    there are a few other members whoget excellent care from there primary gp.
    i hope you can find someone to take you seriously.

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    Hi there,

    It is possible to be treated by anyone as long as they understand Lupus. A Rhuemy is best but some of them even suck! As Steve says, any doctor that treats you like a number is not one you want to be with. If nothing else find a GP that cares enough to learn until you can get to a Rhuemy. Plaquenil and steroids is the first line defense for Lupus so I hope she is putting you on those. I am not a doctor but I will says that the Lupus has caused my BP to sky rocket and it is one of the things that my doctor makes sure I have meds for.

    I say fire your doctor and find another GP until you can get to a specialist. That is only my 2 cents worth though
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    Ditto to tgal, but don't fire your current doc until you find a replacement. Remember the adage "It's easier to find a job when you already have one." In my experience, the same is true when it comes to doctors, too.

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    Lisa,
    Is there a teaching hospital anywhere near you? How far away is Duke in North Carolina? It might be worth a trip to get a good evaluation.
    Hugs,
    Marla

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    Ty tgal and everyone for the info. Marla I will look into Duke I didn't think of that. I'm only on pred. Looking for a Dr tomorrow. Now I have to try to sleep ..up in 5 hours!

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    Lisa,
    My daughter earned her PHD in neurobiology at Duke. It's a fantastic place.
    Hugs,
    Marla

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    Hi Lisa, I feel your pain - I dealt with a couple doctors who for over a year thought I had lyme and just kept dosing me on antibiotics and it wasn't solving anything. I didn't even test positive for lyme, but yet they insisted that I had it, and they never ran any other tests to see if there was something else I had. They had no idea what was wrong with me until I was finally tested for high ANA, high RF and a few other antibodies that I don't know off the top of my head. there are some docs, I've found, who are definitely not as experienced with lupus. But, I will say that it's important to trust any doc over trusting things that you hear on the internet or advice from people who are not medical professionals. Don't veer away from what a doctor tells you to do. I hope your new doctor works out! I see both a gp and a rheumatologist because I have both SLE and RA, but I've heard from many people on this site that this tends to be common.

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    Quote Originally Posted by magistramarla View Post
    Lisa,
    Is there a teaching hospital anywhere near you? ... It might be worth a trip to get a good evaluation.
    This is really good advice - these kinds of hospitals will frequently have specialists with extensive education and experience. I went to a hospital like this when I first got sick. It was the first contact I had with doctors after getting sick and literally within 30 minutes of being there I had someone ask me "do you have a family history of Lupus?", I had no idea of what it was at this time.

    Within a week I had been diagnosed by way of a Kidney biopsy (not fun), which is extremely lucky given that people go months or sometimes years without a diagnosis, getting bounced from doctor to doctor.

    The only downside of a teaching hospital in my experience is that as an interesting case, you should expect to have group after group of medical students coming to gawk at you and poke you!

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