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Thread: Surprise in shower can't feel hot water?

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    Cool Surprise in shower can't feel hot water?

    I know most of you understand I am a little weird but get this one!

    I was having a shower and as I got in I noticed it was rather cool, so I called out to Colin "did you put the dishwasher on?" Colin came to the bathroom and said no. As I was speaking to him I turned around to be surprised. I had my right shoulder/body/arm/hand in the shower water and I turned around and my left side went into the water to find out it was quite hot. I turned and returned laughing as how weird I was I could feel cool to cold water on my right side and almost burning on my left side. A really funny experience!

    Has anyone else had this experience?

    Spoke with my GP and his first reaction was to get an urgent MRI of my brain and he again mentioned he thought that indicated MS. Opppsssss yet another auto immune?

    I am currently not having much success in contacting my neuro to get the authority to get the MRI.

    Am I alone with this experience? Is this a Lupus symptom?
    Last edited by Desleywr; 12-30-2011 at 06:18 AM.
    Desley
    For every dark cloud there is a silver lining!
    Diagnosed: Lupus; mesenteric panniculitis; fat nacrosis;

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    Can't you go to the emergency room?
    I have a weird symptom myself, for about 4 weeks now. A couple of times a day, I feel like there is cold water running down from my head, over my face on to my shoulder. It feels really weird. It happends sitting at the computer, at work, cooking, it doesn't matter if I am standing, sitting or laying down.
    I hope for you, that it is not MS. Get it checked out soon.
    My best wishes for you.

    Debbie
    I may have been dealt a bad hand, but at least I'm still playing with a full deck. ( most of the time anyway).

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    Yes emergency is fine but only a specialist can order a MRI. I too have had other things such as a patch about 3inches running down my back of my leg from the buttocks down to my ankle and it felt like warm water running down this patch. Most weird sensation. I am going to phone my new rhumy if I can't contact my neuro and I can speak with head nurse of the hospital of the hospital where my neuro works I will try on tue 2nd Jan no one is really working before then. Thanks for your input very much appreciated!
    Desley
    For every dark cloud there is a silver lining!
    Diagnosed: Lupus; mesenteric panniculitis; fat nacrosis;

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    rob is offline Super Moderator Super ModeratorEmperor of the World
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    Hi Desley,

    I have these same symptoms. In fact, your description sounds nearly identical to what happens to me. I also find that at times when standing for a few minutes, I lose sensation in my legs, but not muscular control.

    I have SLE, however, I also have MS, and my loss of sensation and inability to feel water temperature is a direct result of my MS.

    Now, I don't want to frighten you, as none of this means you have MS. Lupus can also cause neurological problems that are similar to MS, so this could be just another Lupus symptom.

    I think seeing a Neurologist and getting an MRI is probably the best thing to do at this point. If you've never had an MRI, don't worry, there's nothing to it, just a little noisy, and boring.

    Rob

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    I agree with Rob. I too have these problems. I dont even feel the bruises and/or scrapes and cuts I get all over my body. I just see dried blood on me somewhere and im like "where did THAT come from?", then i look around my body and i find the wound i didnt even feel happen. Get it checked out for sure! Good luck!
    We Live in a MORTAL, FRAIL, IMPERFECT world in which the word "FAIR" doesn't always apply.Make EVERY MOMENT COUNT with the ones you LOVE because it can end in the blink of an eye. Love, Jeannette

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    I have lots of neurological symptoms, too. That was why the neuro was so sure that I had MS. When all of his tests were negative, he kept swearing that Lupus and Sjogren's couldn't possibly cause such symptoms, so there was obviously nothing physically wrong with me. He didn't say it, but I'm sure that he was implying that it was "all in my head".
    LOL- my hubby has hated to shower with me for a long time because I have the water way too hot for him.
    Good luck with the neuro and the MRI.
    Hugs,
    Marla

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    OMG Marla! Thats SO FUNNY you said THAT about your husband! Carl (my hubby) feels the SAME WAY! It would drive him crazy at how hot the shower would be! He couldnt believe it didnt bother me! LOL But that was BEFORE my MS diagnosis. Now i have to turn the shower on and off between washings because the hot steam FLARES my MS SO BAD! XXXOOO
    We Live in a MORTAL, FRAIL, IMPERFECT world in which the word "FAIR" doesn't always apply.Make EVERY MOMENT COUNT with the ones you LOVE because it can end in the blink of an eye. Love, Jeannette

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    Yes, I have Raynaud's symptoms and when I'm in my nice, hot shower my toes are turning all kids of odd colors. My toes and feet are so numb that I can't tell that the water is that hot.
    Hugs,
    Marla

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    Quote Originally Posted by magistramarla View Post
    Yes, I have Raynaud's symptoms and when I'm in my nice, hot shower my toes are turning all kids of odd colors. My toes and feet are so numb that I can't tell that the water is that hot.
    Hugs,
    Marla
    My doc actually told my mom she might need to check the water for me when I take a shower because I told her I make it really hot, and sometimes dont realize quite how hot it actually is. It would probably burn a normal person lol feels good when Im cold though and I love watching my normally purple fingers and toes turn to a normal color for 15 min =)
    "A bad cold wouldn't be so annoying if it weren't for the advice of our friends."~ Kin Hubbard

    Diagnosed: SLE, Raynauds, InterstitialLung Disease, GERD, Myositis, Vasculitis, Possible Sjogrens.
    Medications: 400mg Plaquenil, 2000mg Cellcept, 10mg Norvasc, Nitroglycerin Patch, 20mg Prilosec, 10mg Flexeril, 4mg Medrol, 81mg Asprin.

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    Thanks Rob
    You have been so gentle with your comment. Thank you!

    They have talked MS since 2007 with tests including MRI but I don't seem to catch it as I wait to get into the Neuro then wait to get the MRI the bout has finished and the MRI comes out ok. Very frustrating. I was more wondering if my symptoms were linked with the Lupus. If I can't get the Neuro on Tue I will try and get I touch with the Rhumy as he could order the test.

    It is good to know that others have the same sensation ....really weird feeling. I am a bit of a circus entertainment as my big toe can do its own thing and go for a twitch for a couple of min along with the burning feet and some times I can't feel my shoes. I have patches on my skin that don't have full sensation and I have some very sensitive. But MS can't be diag until the brain has so many spots, which is very frustrating. In some ways people who have been diag with MS compared to people who have the symptoms and the spots can't get caught on a MRI, are in some ways very lucky.

    I haven't had these sensations for about a year now so it was quite a surprise.
    Thanks for your concern and if you have any advice re the MRI and getting it done at the right time I would very much appreciate your comment.

    My Neuro has always said that I have more than one auto immune and that I would have to be patient as they will have to mature before being diag. She is very good and doesn't just hand out drugs but listens and explains but is so very hard to contact when needed. So far Lupus and Fibromyalgia. I was hoping that Lupus would explain the shower experience as now I am back on the merry go round with MS as well. MS could explain fibro symptoms I think?
    Last edited by Desleywr; 12-30-2011 at 05:04 PM.
    Desley
    For every dark cloud there is a silver lining!
    Diagnosed: Lupus; mesenteric panniculitis; fat nacrosis;

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