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Thread: Appt. tomorrow, second 'stab' at a diagnosis

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    Default Appt. tomorrow, second 'stab' at a diagnosis

    I have my 'first' appt. tomorrow morning after a long ten years of off and on appts. that led no where. PLEASE please pray for me and wish me much luck!

    I know it isn't smart, and no one hear condones it,I'm trying to enduce flare. Two weeks ago it seemed to be at it's strongest, and I had wished I was able to see the doctor then. It's been 14 days and though I am still in pain, showing rashes, and pretty damn miserable, I look nothing and feel nothing like I did at the onset. I know that being in the sun gives me terrible rashes on my chest.. But it's too cold and I have to be out in it for a long period of time for it to show up. So I am going to the tanning bed! Hopefully that gives my flare a little kick.

    I am not crazy, I am just desperate for my doctor to SEE what I FEEL.

    This is a new doc, and they think it is just an annual wellness exam. They told me no food or liquid after midnight. I'm hoping they are already doing bloodwork, but if not.. I think I'll request it.


    Once again, PLEASE wish me luck!!!!!
    "Rule number one is, don't sweat the small stuff. Rule number two is, it's all small stuff."
    -Robert Eliot

    Dx: Potential Lupus, Diffuse Systemic Sclerosis, Mixed Connective Tissue Disease

    Rx: Prednisone 5mg 1x daily, Lyrica 75mg 2x daily, Omeprazole 200mg 1x daily, Xanax .5mg prn

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    i hope all goes well.
    a diagnosis, medications, and the end of the flare.

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    Aww, Lexie
    I know just how you feel. My new rheumy here in CA doesn't seem to want to accept the diagnosis that my good rheumy back in Texas gave me, so I've done the same thing before. Much to my dismay, when I went in after no meds and feeling like ****, she didn't even request any blood work! Obviously, I was not happy.
    I hope that you have much better luck.
    Don't overdo it, though!
    Hugs,
    Marla

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    I also know how you feel. I take photos when I have rashes. I also now take my husband and that helps to confirm things that I say. Hope this helps. Good luck and let us know how you get on.
    Desley
    For every dark cloud there is a silver lining!
    Diagnosed: Lupus; mesenteric panniculitis; fat nacrosis;

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    You already know, that is not wise to dare a flare. I do understand your motive though. You want the doctor to see what you are going through and maybe help him to make a dx.
    Like Marla said, don't over do it.
    If you have to have a flare, I wish for you, that you have it, when you go to see the doc.
    Good luck.

    Debbie
    I may have been dealt a bad hand, but at least I'm still playing with a full deck. ( most of the time anyway).

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    Sitting in the waiting room now. Wish me luck!!!
    "Rule number one is, don't sweat the small stuff. Rule number two is, it's all small stuff."
    -Robert Eliot

    Dx: Potential Lupus, Diffuse Systemic Sclerosis, Mixed Connective Tissue Disease

    Rx: Prednisone 5mg 1x daily, Lyrica 75mg 2x daily, Omeprazole 200mg 1x daily, Xanax .5mg prn

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    tgal is offline Super Moderator Super ModeratorEmperor of the Solar System
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    Keep us posted
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    It just so frustrating not to have Drs. believe you are really sick with lupus. I sympathize with your need to try to induce a flare, but please be careful. I am worried for you.

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    I too can sympathise after being patronised and told I had 'sleep deprivation', it was my eye specialist that diagnosed my sjogrens and my dentist and they told me to call the rhuemy to put him straight and frustratingly the Rheumy agreed straight away about me being sero negative Sjogrens, my ANA was 1:380 and my CRP was raised but Rheumy said it was only 'mildly raised' but thank god I have a diagnosis now and am on plaquenil.

    It is very hard trying to be believed and at one point I would have brought on a flare purely to get believed but now I wont and I would never because at the end of the day it is me that suffers, mind you I have been in a flare for just under a year. I see my Rheumy on 29 Feb, I will hand him a list of my symptoms - it will be on paper and I am taking my husband with me because for some reason we only tend to be taken a bit more seriously when our partners are in the room to back us up - that annoys me hugely.

    I would say write your symptoms down, be polite but firm in your approach but never ever put yourself at risk by bringing on a flare, each flare we have can be dangerous - even for us Sjogrens people and there isnt a doctor alive worth putting yourself through that for.

    My whole approach to doctors has changed, I am now firm and not to be messed with and if I am not believed, then they are in for a shock because I compare doctors to shopping for a TV - I am prepared to shop around for a better deal that suits me.

    Let us know how you got on today, I hope everything went OK.

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    UPDATE!

    Okay, so since I was so busy this week (work and looking for a house) I actually wasn't even able to go bask in a tanning bed or induce any sort of flare, so anything that I was feeling was going to be purely due to stress.

    I did walk in there with an outlined symptom list and picture to show of rashes and what not. We spent a good 30 minutes going over everything. Generally, I liked the doc. But, he seems to think that a lot of the symptoms I was complaining about could be related to my RA. And while I'd love to believe that, I'm convinced my RA diagnosis is incorrect being that NONE of my joints show any detioration whatsoever. And I NEVER have swelling. Just aches and pains.

    As far as my chest pain went, he said it was most likely pleurisy. He did try and claim that and chest pains or shortness of breath could be anxiety related.. But I set him straight REAL quick. There is no way I've had steady and persisent anxiety for 6 months straight that has gotten progressively worse.


    SO, to acutally update y'all, we are waiting on the bloodwork (he screed for RA and Lupus) and a chest x-ray. I'm supposed to get an EKG sometime this week also.

    Let's hope for some answers!!!

    He also diagnosed
    "Rule number one is, don't sweat the small stuff. Rule number two is, it's all small stuff."
    -Robert Eliot

    Dx: Potential Lupus, Diffuse Systemic Sclerosis, Mixed Connective Tissue Disease

    Rx: Prednisone 5mg 1x daily, Lyrica 75mg 2x daily, Omeprazole 200mg 1x daily, Xanax .5mg prn

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