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Thread: More Doctors.....what FUN!

  1. #1
    Join Date
    Jan 2012
    Knoxville, TN
    Thanked 3 Times in 3 Posts

    Default More Doctors.....what FUN!

    Well, I went back into the Ruemy yesterday, and they have put me on a 12 day taper of Prednisone again. This is like the 7th time since June. I did get a few questions answered, but then of course by the time I got home, I had a bunch more. He wants me to see a psychologist regarding my depression, because of my history. He also wants me to see the ophthalmologist as I am having vision problems and he wants to know if it is the Plaquenil or the Sjogrens Syndrome. He seemed doubtful that it would be the Plaqenil because I have only been on it since June. He is also scheduling me with a specialist (though for the life of me I cannot remember what kind of doctor he is) to have a kidney and liver biopsy, not sure why or what that is all about.

    The one thing we did not really talk about is the Brain Fog, I am really struggling with it, to the extent that I forgot my daughters middle name the other day, only for like 5 min, I just struggled to bring it into my head. I have also misplaced my wedding ring, I cannot even remember when I last had it on.

    I also (And would love to know if anyone else experiences this) have times where I see things that are not there. Like I will see someone out of the corner of my eye, look up and there is nothing there. Or I will be driving and see something dart across the road, and nothing is there. It freaks me out, I am not sure if this is a visual problem, or mental.

    Finally, and THANKFULLY my husband and I finally had a nice long talk this past weekend. It was the first time we have talked about the disease since I was diagnosed. And it was all thanks to this site!!! He came home Friday, and I had the forum up on my computer, I was not around, so he sat down and started reading, it really had an amazing effect on him. Now I am trying to get him to sign up for his own account, so when he has questions he can post as a family member. I know this is just as hard on him as it is me.

    OH, I almost forgot to ask my main question: Are Sjogrens, Fibromyalgia, Raynaud's and CNS treated as a PART of lupus, or are they all handled separately? In other words, I am on Plaquenil and Prednisone, is that treating all of the above, or is it more like, get the Lupus under control, and then worry about the others??

  2. #2
    Join Date
    Mar 2011
    pinjarra, western australia
    Blog Entries
    Thanked 1,764 Times in 1,211 Posts


    to answer your main question.

    the medication you are on is a good base medicine for all of your illnesses.

    you then need to treat the symptoms as required.

    i also have the same imaginary objects pop out at me.
    i believe it is the brain not sure of what the eye is seeing.
    confused messages, so to speak.

  3. #3
    Join Date
    May 2007
    Seaside, Ca.
    Thanked 948 Times in 732 Posts


    Steve is right. The treatment for most of these AI diseases seem to be pretty much the same. I also have Lupus and Sjogren's. I also tested positive to RA and Psoriasis. The Plaquenil seems to help keep a lot of it under control. Raynaud's can be treated with a medicine if the doc sees fit, but mine just tells me to wear socks.
    I also have Spasmodic Dysphonia and Meniere's, but those are treated separately.
    You seem to be on the right track.

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