More Doctors.....what FUN!
Well, I went back into the Ruemy yesterday, and they have put me on a 12 day taper of Prednisone again. This is like the 7th time since June. I did get a few questions answered, but then of course by the time I got home, I had a bunch more. He wants me to see a psychologist regarding my depression, because of my history. He also wants me to see the ophthalmologist as I am having vision problems and he wants to know if it is the Plaquenil or the Sjogrens Syndrome. He seemed doubtful that it would be the Plaqenil because I have only been on it since June. He is also scheduling me with a specialist (though for the life of me I cannot remember what kind of doctor he is) to have a kidney and liver biopsy, not sure why or what that is all about.
The one thing we did not really talk about is the Brain Fog, I am really struggling with it, to the extent that I forgot my daughters middle name the other day, only for like 5 min, I just struggled to bring it into my head. I have also misplaced my wedding ring, I cannot even remember when I last had it on.
I also (And would love to know if anyone else experiences this) have times where I see things that are not there. Like I will see someone out of the corner of my eye, look up and there is nothing there. Or I will be driving and see something dart across the road, and nothing is there. It freaks me out, I am not sure if this is a visual problem, or mental.
Finally, and THANKFULLY my husband and I finally had a nice long talk this past weekend. It was the first time we have talked about the disease since I was diagnosed. And it was all thanks to this site!!! He came home Friday, and I had the forum up on my computer, I was not around, so he sat down and started reading, it really had an amazing effect on him. Now I am trying to get him to sign up for his own account, so when he has questions he can post as a family member. I know this is just as hard on him as it is me.
OH, I almost forgot to ask my main question: Are Sjogrens, Fibromyalgia, Raynaud's and CNS treated as a PART of lupus, or are they all handled separately? In other words, I am on Plaquenil and Prednisone, is that treating all of the above, or is it more like, get the Lupus under control, and then worry about the others??
to answer your main question.
the medication you are on is a good base medicine for all of your illnesses.
you then need to treat the symptoms as required.
i also have the same imaginary objects pop out at me.
i believe it is the brain not sure of what the eye is seeing.
confused messages, so to speak.
Steve is right. The treatment for most of these AI diseases seem to be pretty much the same. I also have Lupus and Sjogren's. I also tested positive to RA and Psoriasis. The Plaquenil seems to help keep a lot of it under control. Raynaud's can be treated with a medicine if the doc sees fit, but mine just tells me to wear socks.
I also have Spasmodic Dysphonia and Meniere's, but those are treated separately.
You seem to be on the right track.