Hi and welcome to WHL! The good news, if there is any, is that the one you describe sounds much like Discoid Lupus and will only affect the skin. It will take changes on your part and isn't easy but there is little long term health affects since discoid doesn't affect the organs.
You should ( I say should because sometimes it takes much much longer) get more answers when you see the rhuemy. Either way... Welcome to out WHL family. I look forward to getting to know you