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Thread: 1st Rheumatologist appointment next week, what should I expect?

  1. #11
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    My first appointment will be in March, too. My liver specialist referred me I was amazed that I was being referred to an RA. I have a few arithitic symptoms. The things that showed up on my other tests were liver damage. That is what led to the Lupus diagnoses after enough blood tests, an endoscope, a colonscope, a lung xray and enough blood testing to satisfy a starving vampire. I have had the rash flareups and exhaustion for years, but attributed them to aging and allergies. I have been pretty healthy most of my life, but am a diabetic and had Graves diease when I was 38. I am 64 now.

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    The appointment didn't go so well. Of course it fell on a 'good' day when I had minimal pain. I felt like he didn't listen to me, and was trying to make a completely different diagnosis fit my symptoms without listening all the way. He said he didn't see any reason for the pain. I told him my neck hurt the worst, and he didn't even examine my neck.

    Since I was having a good day, I'm also worried that the 5 vials of blood they took won't give an accurate picture of whats going on.

    Am I going to have to wait for my appointment to fall on a flare to get anywhere?

  3. #13
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    tgal is offline Super Moderator Super ModeratorEmperor of the Solar System
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    Quote Originally Posted by lovelyophelia View Post
    The appointment didn't go so well. Of course it fell on a 'good' day when I had minimal pain. I felt like he didn't listen to me, and was trying to make a completely different diagnosis fit my symptoms without listening all the way. He said he didn't see any reason for the pain. I told him my neck hurt the worst, and he didn't even examine my neck.

    Since I was having a good day, I'm also worried that the 5 vials of blood they took won't give an accurate picture of whats going on.

    Am I going to have to wait for my appointment to fall on a flare to get anywhere?
    Welcome to the world of AI diagnosis. This is exactly why it takes some months and even years to get a good diagnosis. Even in a flare sometimes the numbers don't come out. I am so sorry that you are going through this. I have been where you are. It is so frustrating and upsetting. Just know that we will be here with you as you continue this journey
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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  5. #14
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    i'm sorry the appointment didnt go well.. if you have to find another doctor!!

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    I'm trying to get into a rheumatologist too, the only one in the town where I am has 'closed her books' until after easter. My GP called to try and convince her into taking me on as a special favour... apparently she dithered, then asked for a whole host of blood and urine tests. When she gets the results she'll decide if she will see me. I'm not sure if having complicated results means she'll be interested and see me, or if having a straightforward case means she knows I won't be too difficult!
    Before you diagnose yourself with depression or low self-esteem, first make sure that you are not, in fact, just surrounded by a-holes.

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    Quote Originally Posted by lovelyophelia View Post
    but I'm not sure if it's because he is the only one in this small town or if he's the best one in this town.
    Maybe both? Maybe he's the best in your small town because he is the only one!

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    Quote Originally Posted by brandywine View Post
    I'm not sure if having complicated results means she'll be interested and see me, or if having a straightforward case means she knows I won't be too difficult!
    My experience is that the less common the disease, the more interested they are.

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