I started in 1993 with extreme fatigue. 1999 I lost my sight in my left eye.... Gotit back extreme fatigue etc etc.. In 2007 I lost my sight in my right eye fatigue stroke.... In this session has been going on since 2007 and I am now getting a diag of lupus, fibromyalgia, and possible ms or lupus cns or lupus vent. I am now getting the right drugs. I had a neuro since 2007but she has insisted that we don't go on the merrigoround of drug trial as many have side effects that can confuse the diag. I have had to learn to be patient and wait for my condition to mature so it can be diagnosed. It is often that people who have MS take 20 years to get the diag as often their condition doesn't meet the criteria for diag.
Patients and live each day to the fullest is my policy. Today is 40deg cel so not much is happening as it is too hotttttttt.
Good luck and I can say honestly this group helps you get through these times and they are wonderful and you don't feel so alone. Understanding your symptoms is so helpful for you and your dr.
I hope this helps!
For every dark cloud there is a silver lining!
Diagnosed: Lupus; mesenteric panniculitis; fat nacrosis;