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Originally Posted by kwolfsheimer
I just wanted to say that I am going through the very same issues. It happened last year in November-- an inability to catch my breath and a burning sensation in my chest. Took prednisone, antiobiotics. Nothing. Then it just went away by January. I would walk out to the parking lot and would be gasping.
This year it started up in November but hasn't gone away. It seems to be worse actually sitting or lying flat. I did all of the above. Tried steroid and albuterol inhalers. Nothing-- and it's getting worse. They took a chest x-ray-- didn't show anything. Had a stress test and echocardiogram since I had so many risk factors of heart disease. Nothing. I am getting so tired from trying to breathe that my ribcage and muscles are actually hurting now. I am taking large doses of Advil-- helps some, just to make it through the day. I come home from work and go straight to bed.
My general doc has said that it might be tietzes sydrome or costochondritis. My SED rates are good; however,my hand joint pain is through the roof! I have an emergency appt with my rheumy on Wednesday. I'll share any info that I have.
The fact that the steroids didn't work may be a sign that it is not Lupus related. Some docs actual give steroids as a test for AI diseases because they help the majority of the time.
Thanks for the info your doc gave you! That is very helpful
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