One step forward and two steps back! Darn Lupus!
My wife was diagnosed with Lupus way back in 1996 way before we met and were married. She had been in remission however and had never had a flare up...until now. We were married in July of 2005 and happily on our way to spending the rest of our lives together. Around November 2005 she started complaining of extreme fatigue and just not feeling well. Well she went to the hospital in early December of '05 and was quickly admitted as having full blown Lupus. Her kidneys were shutting down and her white blood cell and platelet counts plumetted. She suffered about three seizures from having vasculitis and all the damn medication (prednisone, cytoxan, cellcept, and more). On Christmas Eve she underwent emergency surgery cause she had no platelets and was just bleeding internally. She almost died in an otherwise simple operation that a healthy person could have gone home from in a few days. Well she pulled through and made a very slow recovery. Finally in February of '06 she was well enough to leave the hospital. We arrived home weary but happy we had made it through this ordeal. She continued going to dialysis as her kidneys were still not working but it was something we could deal with seeing as she had just cheated death a few months earlier.
Well amazingly her kidney function started coming back! She went from dialysis three times a week to two then to one then the day came when the doctor said she didnt have to do dialysis anymore. Thank the Lord! Had we finally come to the end of the long dark tunnel? I thought we had. Early on Easter morning I was awoken to find her in distress unable to breathe and coughing up blood. She was rushed to the hospital with a 106 degree fever and sever pneumonia! She was later medivaced to a major hostpital in the city where she remains today right back at square one recovering from pneumonia she almost died from and with dropping platelets again and it seems maybe another flare up! Damn! We have only been married 9 months and we are facing life and death. I feel frustrated, tired, sad. Like everything we achieved the past few months was for nothing. I feel like no one understands what our family is going through. Like no one cares. No one even knows anything bout this disease. I feel like giving up and dying myself. All the money goes to her medical bills. I tried applying for public assistance but they denied me saying I make too much money. Geez. I dont even own a house or have any substantial savings. I cant even fly over to the hospital to see her cause I cant pay for it right now. We live in Hawaii and the hospital is on another island from where we live. I don't know whats going to happen to us. I just needed an outlet to vent. I'm sure this is all old hat for most of you all and I'm sorry if I'm rambling on. Thank you for listening and putting up with me. Also I'd like to ask if any of you can include my wife in your prayers. Her name is Christina and I love her very much. Thank You All!