Lupus Like Syndrome
Hello Every one,
i have been ill for about 6 years now, after fighting with my Doctor i finally got to see a Neurologist and Rheumatologist, i have a small hole in my spinal chord which looks like Copper/b12 deficiency although my bloods come within "normal" range, and high inflammation neg ANA. I have all the usual symptoms of Lupus and then some.
I have always got low blood pressure and low body temp.
I got a letter from my Rheumatologist who has diagnosed me with Lupus Like Syndrome, i just wondered if any one could explain this to me as my next appointment is in April.
I had a funny turn last night i just go completely weak and shake my legs and arms feel like lead, my back and the back of my head go numb and tingle and i feel very spacey.
Also having trouble sleeping tonight as everything hurts, even going to the toilet feels like a trip up Mount Everest!
thanks for reading, kaz, x
Wow what a quick reply, thank you tgal, x
the only meds i have at the moment are Lansoprazole, Amitriptyline and Tramadol, at my last visit to the reumy i had an injection of Medrone in the buttocks and for a month i felt great, but yesterday all my symptoms have come back with a vengance,
Welcome to WHL. I'm glad that you have found us, and I hope that you soon find out which AI disease (or diseases) is causing your Lupus-like syndrome.