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Thread: Prednisone

  1. #11
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    I am going to talk to my doctor. I have various medications I would like to ask about. I will be tapering with prednisone before I'm done. Not having any side effects. I'm pretty happy with it. I am worried about heart disease anyway. I need checked out for CAD or astherclerosis. I have symptoms pointing to that and a high family risk as well.

  2. #12
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    I have to agree with you TGal - I'm extreamly grateful that predisone is an option - so far it is the only treatment that has consistently worked for me.

    Predisone is a last option, but it is still an option and I am grateful for it. It's nice to feel good once in awhile.
    much love to all my lupie friends -

  3. #13
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    tgal is offline Super Moderator Super ModeratorEmperor of the Solar System
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    I am going to post a link here that I am going to talk more about in another thread however one point needed to be stated here. This information is from Johns Hopkins and written by a Rhuemy there. I was amazed at this entire article but I thought one part of it HAD to be placed into this thread. I will give the link to the entire article at the bottom of the page

    Prednisone is damaging. But without it, half of lupus patients died in four years. If you have to be on it for long periods of time, there are problems with it. Even low doses can lead to fractures and osteoporosis. Also, low doses of prednisone increase the risk of coronary artery disease. The main cause of death when you have lupus is cardiovascular disease. To prevent this, you must follow a low fat, low cholesterol diet. If you have high blood pressure, take your medicine. Do you know what your homocysteine is? It is a sulfur amino acid, and if you have a higher than normal level it is a risk factor for coronary artery disease and stroke. You can fix a high level by taking folic acida B vitamin everyday. So, you have to live with your lupus, but you can help to prevent complications. (red color is mine)

    We don't like the steroids but it seems to keep us alive.

    http://www.hopkins-arthritis.org/arthritis-info/lupus/
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    Trish91171 (02-04-2012)

  5. #14
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    I had the tapering does in December. It seemed to stop the rashes for a month, but they are back. I did not gain weight or bloat. My blood pressure is 110/68, but my dad died at 55 from a sudden unexpected heart attack. I have an appointment with my liver specialist this morning to see what my next step will be.

  6. #15
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    I did not see any body else mention the probability that if you suddenly stop prednisone say just cause you feel better, that you will probably put yourself right back into a major flareup and then you are back to starting from scratch:~{ I think as with a lot of this you get used to what you are going through with the disease and the meds. not ideal however as said previously better than the allternative.
    Blessed be the God and Father of our Lord Jesus Christ, the Father of mercies and God of all comfort, who comforts us in all our tribulations, that we may be able to comfort those who are in any trouble, with the comfort wich we ourselves are comforted by God. 2 Corinthians 1:3

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    tgal (02-03-2012)

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