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    Default Hello All

    Hi! I'm newly diagnosed with mild lupus (whatever "mild" means) and osteoarthristis in my knees. I'm so tired of being tired! I have spent a year trying to find out what is wrong and was finally sent to a Rheumy 2 weeks ago. They have put me on hydroxychloroquine 250 mg twice a day on top of all my other meds. I already take vimovo for my knees. What can I expect??

    Thanks so much for letting me join your group. I appreciate it greatly!

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    Hi Dellee,

    Welcome to WHL.
    I don't know exactly what mild lupus means, but maybe it means, that it was caught early enough, before it could do to much damage.
    Being on meds is the first step to prevent to much damage.
    It is hard to say what you can expect, because everybody is different, when it comes to Lupus.
    What kind of symptoms do you have? What has send you to the Rheumy?
    If you have any questions, go ahead and ask.

    Debbie
    I may have been dealt a bad hand, but at least I'm still playing with a full deck. ( most of the time anyway).

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    Quote Originally Posted by Dellee10 View Post
    Hi! I'm newly diagnosed with mild lupus (whatever "mild" means) and osteoarthristis in my knees. I'm so tired of being tired! I have spent a year trying to find out what is wrong and was finally sent to a Rheumy 2 weeks ago. They have put me on hydroxychloroquine 250 mg twice a day on top of all my other meds. I already take vimovo for my knees. What can I expect??

    Thanks so much for letting me join your group. I appreciate it greatly!
    Hi Dellee and welcome to WHL! I am sorry for what you are having to go through but I am glad that you found us.

    Sadly there is no answer to "what can I expect". Lupus is different to each of us. Since it is our body simply attacking itself it really depends on what part it decides to attack. Hopefully with the plaquenil that you are on (same as hydroxychloroquine) you will feel much better and your symptoms will ease. It does take it several months to really work so don't fret when you don't feel any changes right away. While you may hear some negative things about the drug it is the first line defense for Lupus and the vast majority of us take it with little or no problems. It is important, however, for you to get to an ophthalmologist and have a "plaquenil eye test". It is just a full eye exam and you want to have one now to use as a base for the ones you need yearly while on this medicine.

    Please make yourself at home and welcome to our WHL family. I look forward to getting to know you!
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    Quote Originally Posted by debbie-b View Post
    Hi Dellee,

    Welcome to WHL.
    I don't know exactly what mild lupus means, but maybe it means, that it was caught early enough, before it could do to much damage.
    Being on meds is the first step to prevent to much damage.
    It is hard to say what you can expect, because everybody is different, when it comes to Lupus.
    What kind of symptoms do you have? What has send you to the Rheumy?
    If you have any questions, go ahead and ask.

    Debbie
    It won't let me "thank" you under this post (odd) but I did want to do so. Well said
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    Quote Originally Posted by tgal View Post
    It won't let me "thank" you under this post (odd) but I did want to do so. Well said
    Well, how rude.lol

    Thanks Mari.

    Debbie
    I may have been dealt a bad hand, but at least I'm still playing with a full deck. ( most of the time anyway).

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    Hello Dellee
    I have been put on the same drug for the past month and I was told that it will take up to two mths to be fully working.. I have seen improvement after a week and slow improvement each week. So good luck, and welcome!
    Desley
    For every dark cloud there is a silver lining!
    Diagnosed: Lupus; mesenteric panniculitis; fat nacrosis;

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    hi dellee,
    and welcome.

    elcome to what many of us call our cyber family.
    we like to treat every member as a family member, (with love and compassion).
    it is hard to find "normal" people who understand.
    here we all understand.


    it is hard when doctors cannot give a definitive answer.
    unfortunatelly, with auto immune disorders, so many symptoms overlap.
    some of us have spent many, many years trying to sort out our problems.

    usually mild lupus refers to lupus that has not yet started to effect any major organs.
    this is good.
    plaquenil is avery common drug for auto immune issues.
    as mari said, please see ayour doctor for a referal to an eye specialist.
    a base line test to see how your eyes are is required.
    this is because plaquenil can, (but usually doesnot), effect our eyes.
    you will then need follow up tests for the rest of your life.
    it is no big deal, but makes sure you are safe, and do not loose any sight from the drug.

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    Quote Originally Posted by Desleywr View Post
    Hello Dellee
    I have been put on the same drug for the past month and I was told that it will take up to two mths to be fully working.. I have seen improvement after a week and slow improvement each week. So good luck, and welcome!
    You are lucky if you get full results in 2 months. Usually it is about 4 but for some can be a month or two more. If you are already feeling it then you should be feeling really good in a couple more months! Yay you!
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    hello dellee welcome to whl family we are here to be your support and now are part of our family.

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    Thank you so much for the warm welcomes! This is such a confusing time for me and I appreciate all the support. I see my opthamologist every 3 months already as I have a problem with blurry vision and severe dry eyes. They can't figure out what the cause is, but it comes and goes. I will go a period of time with my vision being fine and then suddenly it will go very blurry. I use drops in my eyes daily and a gel at night. I also am a diabetic and have thyroid problems. My legs swell bady. for which I take a water pill and they hurt. I can't seem to stand or sit for very long at a time. My hands and feet are extremely cold, I'm tired all the time, have sores in my mouth, break out in a rash when in sunlight, and I'm generally achy all the time. My Dr. was out of his office for almost a year and the person filling in for him was trying to figure out what was wrong with me. I was diagnosed with diabetic neuropathy, fibromyalgia, arthritis, PVD, and sun allergies. My Dr. returned to his practice and redid all my bloodwork and said I had none of those. that my bloodwork and symptoms were all linked to lupus and osteoarthritis. He then sent me to a Rheumotologist, who did more tests and confirmed his diagnosis. I have been off of work because of all of my problems and hope that the new med will help me to be able to return. Again, thank you so much!

    Della

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