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Thread: connective tissue disorder

  1. #11
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    Hey Shine,
    At least you now have a positive diagnosis. It sounds like you have a caring GP, who will work with you on finding a good combination of meds to get you feeling better until you can get situated with a rheumy.
    Lots of luck.
    Hugs,
    Marla

  2. #12
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    a diagnosis is the first step.

    i am happy for you.

    i hope you can get "back to normal".......
    most of us have a new "normal",
    as we cannot get back to the old "normal".

  3. #13
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    What do you all mean by "new normal"? Surely if the meds work then I should be able to get back to normal normal? Am I being naive?

    I just want to be the one who gets up before everyone else in the morning, who practically skips everywhere, who dances like an idiot, who doesn't have to use the handrails, who can sit down without groaning, who can work hard and play hard, who doesn't have to worry what will hurt when I wake up in the morning, who doesn't have to say..."no I can't do that today." I'm 25 for foofs sake. I don't want to be so limited This is getting me so down. I have bipolar too and I'm struggling already.

  4. #14
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    Shine,
    Some people have a remission once they get on the right meds and do feel great like what you described - especially younger folks like yourself.
    I'm 54, and I've slowed down a lot. There are others here who are the same age and they are pretty active. Everyone is different.
    Be sure to talk to your doc if you having problems coping. He/she might have to adjust your meds for the bipolar disorder as you work out the right meds for the lupus.
    Hugs,
    Marla

  5. #15
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    everybody is different.
    so our normal can be different also.

    i am no longer able to work.
    i have recently had a few issues with my brain going into a pause,

    so my new normal is not what it used to be.

    some people get back to the old normal .........
    but i am far from that lucky.

    remember everyone reacts differently to lupus,
    and lupus medication.
    so your normal will be yours, not the same as mine.

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