I wanted to take a moment to also welcome you to our family. I am so sorry that your Grandson is suffering so much from this disease and I know that this must be very difficult for you. He is very lucky to have you and you are doing one of the most important things that you can do for him right now: learning as much as you can about this disease so that you can help him in any way that you can.
Please know that, you are not alone and that we are here to help you in any way that we can as you reach out to help your Grandson.
I am sure that you will learn a lot here and we are more than willing to answer any questions that we can, give you all of the support that you need and provide you with a safe and reliable place to get information. I wish you the very best
Peace and Blessings
Look For The Good and Praise It!