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Thread: SYStemic Lupus

  1. #1
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    Question SYStemic Lupus

    I do not have much of rheumatoid problems. i had discoid breaksouts on my forehead and around my nose. I itched so bad I thought I would lose it. I had the brain fog and exhaustion. A blood panel showed the increase in liver enzymes that started my diagnosis.Mine is affecting my internal organs. I was sent to a liver specialist . He gave me me a tapering dose of predisone four weeks ago. iI ran out ths week. I am begfinning to to see signs of it coming back. The rash and purple spots on my hands are beginning again. I do have an appointment to see thim again until the 17th of Jan. He is Dr Michael Sullivan in Kingsport Tn. I live in south west Virginia. Does anyone else live in the area

  2. #2
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    Hi Hobbsey,
    Those purple spots are familiar to me. I get them on my arms, hands, trunk and thighs. Sometimes one or two will get really large and become flaky.
    These were one of the first things that got my PCP back in Texas concerned back in 2007. They went away completely while I was on Methotrexate, but now they are back.
    MTX can be hard on the liver, so I doubt whether your doc will want to try it on you.
    Each of us is different, and our docs have to experiment until they find the right meds and dosages for us.
    Keep a good list of the symptoms that you notice - perhaps even take some pictures of the spots and rashes - and be ready to discuss when you see the rheumy.
    Hugs,
    Marla

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    hi hobbsey,
    welcome to our cyber family.

    i cannot help with your issues,
    but i did want to say hi


    hi

  4. #4
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    I wanted to say HI as well! I'm like Steve, i dont live in your area, but GOOD LUCK with your appt! Keep us updated!!
    We Live in a MORTAL, FRAIL, IMPERFECT world in which the word "FAIR" doesn't always apply.Make EVERY MOMENT COUNT with the ones you LOVE because it can end in the blink of an eye. Love, Jeannette

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