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Thread: Advice needed

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    Default Advice needed

    My wife has been an insulin dependent diabetic for 30yrs. A little over a year ago she began experiencing pain in her fingers. The normal rhematoid arthritis tests were conducted. She was eventually diagnosed as having lupus. She was prescribed nivaquine for seven months without any pain relief. Five months ago she was put onto metatrexate (4 tablets) once a week together with daily follic acid intake. two months ago the metatrexate dose was increased to six tablets. To date no relief from the pain. Morning episodes of stiff swollen fingers have increased. How do we move forward?

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    I was on mtx for several months and then switched to imuran as mtx was not helping.I had a bad reaction to imuran so I was told to stop taking it. I have an appt. next week to discuss next course of action.

    Now i'm sure this doesn't help-except to illustrate how frustrating lupus can be.
    Many of the meds take weeks or months to show improvement-or to prove to be of no help.

    Good Luck!

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    Mahomed Sader (01-02-2012), Saysusie (12-26-2011)

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    Hi and welcome to WHL. First off please remember that we are not doctors we are simply people living with this disease as your wife is.

    Having said that, I would suggest that you have your wife talk to her doctor about switching to another medicine or an injectable dose of MTX. One of the hardest parts of this disease is that there is no single way to treat this disease. It is simply trial and error with each of us until we find something that works.

    I will keep my fingers crossed and keep us posted!
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    Saysusie is offline Super Moderator Super ModeratorEmperor of the Universe
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    Welcome to our family. As you can see,our best advice is to speak to her doctors about trying a different medication or a different form of the Methotrexate. Please check our sticky entitled Lupus Medications where different treatment regimines are discussed. This may give you a bit more information regarding the options tnat are available. I wish you both the vey best
    Peace and Blessings
    Namaste
    Saysusie
    Look For The Good and Praise It!

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    Mahomed Sader (01-02-2012), tgal (12-26-2011)

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    hi mahomed sader,

    welcome to our cyber family.
    thank you for caring so much for your wife.
    not many people would take the time and effort to search for answers like you have.



    lupus is a reaction within our body.
    our immune system, attacks us, instead of bugs and germs.

    it has a different reation in everyone. it also changes what it attacks in some people.

    what works for me, may or maynot work for the next person.

    in saying that, what doctors are trying to do.....
    with most frontline drugs is to slow down our immune system.
    by slowing it down, they slow down the attack upon our bodies.

    there are many drugs that can do this, but the only way to work out which one is the right one for your wife is trial and error.
    if one drug does not work, after an allotted time, then i believe you nedd to try another drug.


    also it is not uncommon for lupus patient to also have more than 1 problem at the same time.
    there is 63 different auto immune diorders the body has to chose from.
    many of us also suffer from fibromyalgia.
    the most common symptom of fibro is hightenned sensetivity to pain.

    a good example of how different lupus patient are.....
    i recently had an accident where i ran a lawnmower over my toes.
    i went to hospital.
    the doctors were very switched on.
    because i have lupus, and take methotrexate, they treated me differently to usual patients.
    my treatment was indervidualised to my situation.
    they needed different drugs and different procedures.

    once again welcome.

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    magistramarla (12-27-2011), tgal (12-26-2011)

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    Hello Mahomed,
    The others, especially Steve have said it all. I just wanted to say welcome to WHL.
    I hope that this site helps the both of you, and I encourage both you and your wife to come back and join our little "cyber family".
    Hugs,
    Marla

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    Many thanks for responding. I feel that the meds need to be changed. Hopefully this will be considered at the next doc visit.

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    rob is offline Super Moderator Super ModeratorEmperor of the World
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    Hi Mahomed,

    I just wanted to welcome you to our group.

    Please make yourself at home here!

    Rob

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    Hi thanks for taking the time to respond. Am aware that this is a support group and was hoping to get a response from someone with "similar" symptoms. Yours and all the other posts have really lifted my spirits. Thanks.

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    Thanks! feeel very welcome already.

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