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Thread: Update on Low Cortisol Levels

  1. #1
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    Default Update on Low Cortisol Levels

    So I got blood work done dec 12th after being put back on 7.5mgs of prednisone for 2 weeks and my complement level was still notably low. I also had bacteria and protein in my urine. My dr had me go today and get a repeat of the labs as well as a few other tests. She is thinking either infection or kidney inflammation. I have never had the kidney issues before if it wasn't a kidney infection and I have no symptoms of anything. Anybody have any suggestions/can you relate? I know one thing that hasn't quit is my hair falling out. Ever since it's gotten worse it just refuses to stop. I do not lose clumps but it's over all thinner and my hair was thin to begin with. I take a daily vitamin as well as use 2 hair products to help with split ends and hair repair. The other thing I've noticed is I am very thin. I always have been but since the prednisone I've actually lost more weight. I only weighed 98lbs at my last appt and I appear thinner to myself now. You can see the tops of my ribs right underneath the breast area...it's very discomforting to see... :/....I've tried everything to gain weight. Increased sodium, fat and processed foods like they told me too and even added a boost everyday to my diet that has extra calories in it...nothing works...
    *LadyBug*- Epilepsy Dx: 2003 & UCTD w/SLE features Dx: 2009 SLE/Lupus Dx: May 12th 2011--Current Meds:
    Plaquenil-200mg 2x/day
    Prednisone-7.5mg 1x/day
    Methotrexate- 2.5mg 4 pills 1x/week
    Keppra-750mg 2x/day
    Daily Vitamin-1x/day
    Folic Acid- 1mg 1x/day
    Protonix 40mg 1x/day
    Bentyl- 10mg 4x/day, Miralax- 17g 1x/day
    Vit. D 800IU's 1x/day
    Lyrica- 75mg 1x/day
    Flonase 50mcg 2 sprays each 1x/day

    Wanna know my story, just ask!

    *Lord_Walters_Lady* <3

  2. #2
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    Default

    Wow, we have a lot of the same symptoms right now but my kidney involvement is what diagnosed me 3 yrs ago. I always have protein im my urine but it is stable, they check ever 6 months or if I experience and UTI type symptoms. I am not taking prednisone right now because I am breastfeeding but would be if not actually had to take 10mg for 14 days last month to fend off a flare. My hair has been falling out for the past month and I weigh less than I did before I was pregnant so even my prepregnancy clothes are all too big. I wish I had a better idea of whats going on but I don't.
    Everyday holds the possibility of a Miracle

    SLE, Nephritis, Raynaud's, previous ITP
    Plaquenil, baby aspirin, Flinstones vitamins

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  4. #3
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    Default

    Gosh that sounds awful. I'm beginning to wonder if this is not nephritis myself. Last night I started out with this vertigo type episode with headache, dizziness, nausea etc and I was exhausted. When I laid down all the burning and aching started along with the cold chills. So I knew it was the start of a flare. Today the symptoms have been off and on. Ugh. We'll see what the re test results bring. I hope you get answers! Feel free to keep in touch through email etc. *hugs* Happy Holidays! -Brittanee
    *LadyBug*- Epilepsy Dx: 2003 & UCTD w/SLE features Dx: 2009 SLE/Lupus Dx: May 12th 2011--Current Meds:
    Plaquenil-200mg 2x/day
    Prednisone-7.5mg 1x/day
    Methotrexate- 2.5mg 4 pills 1x/week
    Keppra-750mg 2x/day
    Daily Vitamin-1x/day
    Folic Acid- 1mg 1x/day
    Protonix 40mg 1x/day
    Bentyl- 10mg 4x/day, Miralax- 17g 1x/day
    Vit. D 800IU's 1x/day
    Lyrica- 75mg 1x/day
    Flonase 50mcg 2 sprays each 1x/day

    Wanna know my story, just ask!

    *Lord_Walters_Lady* <3

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