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Thread: Decision time is getting closer.

  1. #1
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    Default Decision time is getting closer.

    It looks like I am getting worse.
    I have been working at my job for 6 years now. We get 3 paid personal days and 3 paid sick days.
    The first 4 years I didn't use any of my sick days and was able to roll them over to the next year.
    Two years ago, I used 3 of the 6 accumelated days. This year I have used all 6, plus all 3 of the personal days, on top of my 3 weeks vacation. I don't really call in sick, per say, I find somebody to take over my scheduled day and use a sick or personal day.
    I have been "out" of sick days for three months now. My anniversary date is Jan.5 and I start back with 3 sick days and 3 personal days.
    The thing is, I could really use them now.
    Monday, I had to be at work at 5 am, unload 10 pallets( ca. 1000 cases, most of them weigh about 20-30 pounds) onto the shelves and from 9 am to 1 pm, I had to run the register. We sit at the register, but it is very hard work as well, because we have to scan 48 items a minute and it also requires heavy lifting.
    Anyway, on monday I was in alot of pain ( even before I started working), plus I felt sick and very weak.
    I actually cried, while I was unloading those pallets, the store is closed, when we fill the shelves.
    I am so burned out, I feel like I can't go on.
    Lately I get waves of weakness, where my arms and legs get very weak, I can barely lift my arms and my legs can barely carry me. It lasts about 30 minutes and than it goes away.
    Right now, I am without meds, because of my liver. But even with the meds, I had to use my sick days.
    I think that means, that I am at the end of my working days.
    I have been trying to find a job in an office, but so far, no luck.
    It won't be easy to get a new job, I am almost 56 and unfortunately, younger people have a better chance.
    My only hope is, that my husband gets a big promotion, which is in the works, if his boss can aquire the new business, he is bitting for. It would involve a move to Maryland, but at this point, I don't care.
    As it is right now, I am either getting a new job, or I have to stop working ( financially not possible), work until something happens and I am forced to quit and apply for disability.
    Today I am off and I know I will be sleeping most of the day, to recharge my batteries.
    Sorry for the long rant. I just don't know, what to do. All I know is, I can't go on like this.

    Debbie
    I may have been dealt a bad hand, but at least I'm still playing with a full deck. ( most of the time anyway).

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    sorry to hear the news Debbie, I use to carry 30 pounds plus now I can't even pull Milk off the counter. How sad is that :-( I am a full time mom for almost 10 years but I am pretty sure someone here will come along and help.
    Hugs
    Liz
    Diagnosed with SLE Lupus May 2nd 2011. I am taken Plaquenil, Pain Killers, muscle relaxers.

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    rob is offline Super Moderator Super ModeratorEmperor of the World
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    Hi Debbie,

    Coming to grips with the fact that I could no longer work, was one of the most difficult things I had to face as a result of my SLE diagnosis.

    I applied for Social Security Disability not long after the diagnosis, and was approved about 6 months later. Something many people don't know about being on disability, is that you can still work a part time job if you are able to, without having any affect on your disability status.

    A person can receive full SSA Disability Benefits and you can still work a part-time job if physically able, and earn up to $1010.00 per month on top of the full disability amount without having any affect on disability status or benefit payment amount.

    The Social Security Administration considers any monetary income equal to, or less that $1010.00 per month to not be a Substantial Gainful Activity, and thus it has no effect on your benefit status.

    It's an option that most people don't know about. I don't know if it's something you would want to do, but it's something to consider.

    Rob
    Last edited by rob; 12-14-2011 at 05:11 PM.

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    Hugs Debbie...I am so sorry you are having a rough go of it.

    Does your employer know you have Lupus?

    My head is so full, fogged like an auto's windshield but I hope I can suggest something that will help. Do you get your annual SSA Statement? It usually comes a month or 2 before you birthday. It will state the amount you are entitled to if disabled. No two people SS disability income will be same, as it is based on our work wages and length of time working. I did a quick research about Lupus and qualifying for disability and I found this.

    Look into this, for a start to give you some direction. Too, know you can hire a SS Disabilty lawyer, they only collect if you win. They are paid from the back pay benefit you would receive from the time you applied. Also, I am sure in the Financial forum here I had posted links about applying for benefits...check it out.

    The Social Security Administration (SSA) lists Systemic Lupus Erythematosus under Section 14.00D1 and Section 14.02 of the Blue Book. SSA requests medical evidence of a Lupus diagnosis that will satisfy the criteria for "Classification of Systemic Lupus Erthematosus” in the most recent edition of the Primer on Rheumatic Diseases published by the Arthritis Foundation. These criteria include constitutional symptoms and major organ or body system involvement. In addition to this medical evidence, SSA requires that you meet the criteria under either Paragraph A or Paragraph B below:

    1. Your medical documentation must show that at least two or more of your major organs or body systems are affected by Lupus AND that at least one of those organs or body symptoms is affected to at least a moderate level AND have at least two symptoms, such as severe fatigue, fever, malaise, or involuntary weight loss.OR
    2. You have experienced repeated manifestations of Lupus with at least two of the constitutional symptoms (severe fatigue, fever, malaise, or involuntary weight loss) AND marked limitation of at least one of the following:
      1. your daily activities,
      2. your ability to function socially, or
      3. completing tasks in a timely manner due to deficiencies in concentration, persistence, or pace.

    Some links to read...
    Very good read .. http://www.ssa.gov/disability/profes...mune-Adult.htm
    http://www.lupus.org/webmodules/weba...=168&zoneid=38
    http://www.lupus.org/webmodules/weba...d=386&zoneid=9
    I have Lupus. So *^#@! what.

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    Debbie,
    I faced the same decision in 2009. I loved my teaching job, but my health was getting worse and I was feeling that it wasn't fair to my students that I had so little energy to work with them. My hubby also happened to get a new opportunity placed in front of him. I did some soul-searching, and decided that it was time for a change.
    I helped the school to find a new Latin teacher, and we moved so that Jeff could pursue his dream of getting a PHD.
    It has been a good decision for us. I'm moving a lot slower than before, and I know that if I had tried to keep teaching, it wouldn't have gone well. We are having to survive one one income, but with all of the kids gone, it isn't so bad.
    I know that it is a tough choice - it's like leaving behind a big part of your identity - but sometimes you have to consider your health first.
    My thoughts are with you.
    Hugs,
    Marla

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    the decision can be one of the hardest ever.
    when i gave up work, it cost me and my family.

    the australian system is better than the american.....
    but we still went bankrupt.
    we lost our house, our car and all of our toys.

    we went from over $160,000 pa to under $50,000

    when rent is about 300 per week
    and food is atleast 250.
    you add up the change.

    sometimes you need to take a step of faith.
    before it is forced on you, and you lose the ability to control some of it.

    if your employer is a good friend....
    maybe you can apply for disability.....
    and help at the registers by filling in on others sick days.
    when they cannot work, the boss calls you.
    that would probably remove most of the filling of the shelves.
    and you could keep the pay below the governments threshold.

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    Thank you everybody for your tips. It is very much appreciated.
    First and foremost, I have got to say that not working is not going to make me sad. I have worked for 40 years and I don't think that I am going to miss it.
    Oluwa, you are right, I get the summery from the SS Administration every other year and as of now, I would get about $1200.00 a month. This is enough money to make it on. BUT, I can't be without an income for about two years, until I get approved for disability.
    Rob, you are one of the very few people who was approved for disability in six months. It usually takes 2 years.
    As for working part time, once I have been approved, we'll be ok financially. It is just the time in between, I worry about.
    But I know, that something could happen tomorrow and I won't have a choice but quit working.
    Marla, I know how you feel about letting your students down, I feel like I am letting my co workers down. They have to pick up my slack and some of them are not happy about it.
    Steve, I work for the largest grocery chain, here in the USA, even though my store manager is understanding, the upper management is not. The company rule is, either you can perform at 100 % all the time, or they will let you go. My store manager has allowed me to take every wednesday as my one day off, for the MTX shot on tuesday. That is also against the company rule, you have to be AVAILABLE 6am -10pm, 7 days a week. If you are not, they will let you go. My manager is taking a risk of getting in trouble for it. I know, it scrazy, but that is the sad reality of this company. Its all about bottom line profits, who cares about the people.
    Anyway, thank you for everybodies input. I have to really think about, what to do next.
    I am working 2pm-10pm, today. Right know I am feeling at about 30%, I am weak, fatigued, dizzy, I am coughing my lungs out, my joints hurt and my muscles are weak and painful.

    Debbie
    I may have been dealt a bad hand, but at least I'm still playing with a full deck. ( most of the time anyway).

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    rob is offline Super Moderator Super ModeratorEmperor of the World
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    Quote Originally Posted by debbie-b View Post
    Rob, you are one of the very few people who was approved for disability in six months. It usually takes 2 years.
    My father is a bit of a legal genius, and I had him handle my case and all the paperwork, and drive me to all the appointments. He hand carried every form to all of the various doctors and had them sign on the spot, rather than mailing it all and waiting. He also dealt with the Social Security representative at the local office who was handling my case in person rather than on the phone or by mail. He's very detail oriented and thorough with paperwork and forms.

    I'm glad I had him to act as my representative/advocate, because I still had not gotten my flare activity under control, and I was so tired and foggy I would have screwed up the paperwork big time, and missed appointments.

    Rob

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    Oh wow Rob,

    I had no idea, that your dad handled all that for you. He is awesome.
    Should I get a lawyer right away and not even try it on my own?

    Debbie
    I may have been dealt a bad hand, but at least I'm still playing with a full deck. ( most of the time anyway).

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    rob is offline Super Moderator Super ModeratorEmperor of the World
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    Quote Originally Posted by debbie-b View Post
    Oh wow Rob,

    I had no idea, that your dad handled all that for you. He is awesome.
    Should I get a lawyer right away and not even try it on my own?

    Debbie
    Most people I talk to who did it themselves, ended up being denied. They had to fight it, and eventually they were approved a year or two down the road. If you can afford a lawyer, I do think it would be wise to hire one and save yourself a whole lot of time and aggravation. There is a ton of paperwork, there's hoops you may need to jump through, and there are endless appointments and interviews.

    All of Dad's years with the Treasury Dept. gave him an uncanny ability to understand bureaucratic systems and how to "game" them to make them work for you. Of course, I was also fortunate in that Dad works for free. Had he not been available to help me though, I would have ended up hiring a lawyer. Even without brainfog, paperwork has never been one of my strongpoints.

    Rob

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