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Thread: Methatrexate Injections and Ulcers

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    Default Methatrexate Injections and Ulcers

    I get .6 methatrexate injections twice a week. My husband gives them to me actually. And I have really severe mouth ulcers. Was wondering if anyone else has had this problem with either the injection or Lupus itself?

    They are talking about taking me off the methatrexate and putting me in that new Lupus drug Bynlista (sp). Not sure which of the two would be the worst.

    Sure would like to hear from others that may have had this problem. They have tried just about every thing to get rid of them. Nothing works so far.

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    I get mouth ulcers when my WBC's are low. My rheumy has given a prescription for 1 MG of Folic Acid, with the instruction that I take up to four per day (depending on the amount of mouth sores). It's very inexpensive.

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    Melody,
    As BonusMom said, it is very important to take folic acid while you are taking MTX. While I was taking it, all of my skin issues and sores cleared up.
    Now that I am off of it, I'm getting my weird little skin issues back.
    Hugs,
    Marla

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    I take 1 mg twice a day. But rhumey told me not to take the folic acid on the days of my injections. But, I thought I was on the highest amount of folic that I could take. Put a call to Dr. today, hoping to hear from him tomorrow.

    Thank you for the info. So much to learn still about lupus, after 15 years.

    Melody

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    It is the first time, that I hear somebody injecting MTX TWICE a week. Why do you inject twice? The norm is once a week.
    I am like Marla, I have less of the mouth sores, when I am taking MTX, than without it.

    Debbie
    I may have been dealt a bad hand, but at least I'm still playing with a full deck. ( most of the time anyway).

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    I take MTX pills but Ido know that it is like any other kind of chemo and it can cause mouth ulcers however I get mouth ulcers when I am about to or am going into a flare. Mouth and nose ulcers are a Lupus symptom so it could be from the meds or the disease. Listen about the Folic Acid and talk to your doctor.
    Mari

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    in australia, the normal amount of folic acid, in pill form, is 5mg.
    i was told to take it between 3 and 6 days per week.
    never on mtx day.

    that is 30mg per week when in flare,
    and 15mg for maintenance.

    my suggestion is talk to your doc about increasing.

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    Very interesting y'all!

    I take 2 mg of Folic acid every day. I do take it on my injection days, is there a reason why you shouldn't take it the day of your injection? Sense upping my dose of Folic acid I haven't been as sick as I was on 1mg. Although I am still wiped out for two days.

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    Quote Originally Posted by Jaime Bea View Post
    .... is there a reason why you shouldn't take it the day of your injection?....
    the folic acid creates a chemical reaction both with your body and the methotrexate.
    it deminishes and alters the effect mtx has on ytour body.

    my rhumi told me that i was better off not taking the folic acid, rather than taking both.
    he was very insistant on it.

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    Quote Originally Posted by steve.bryce View Post
    the folic acid creates a chemical reaction both with your body and the methotrexate.
    it deminishes and alters the effect mtx has on ytour body.

    my rhumi told me that i was better off not taking the folic acid, rather than taking both.
    he was very insistant on it.
    Wow, I was never told that, and I took my folic acid on the day of my injection. That is interesting to find out now.
    Hugs,
    Marla

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