Wecome to our community.
It is frightening when you are first diagnosed with a disease, and you will have so many questions you want answered. The most frustrating thing I had to deal with when first diagnosed with Lupus was waiting for things to start improving and trying to understand which symptoms were Lupus related or not. With time you will start to see some pattterns emerging. I too was very scared to go out in the sun, and where I live, the sun is very hot. After a while I realised that the sun doesn't cause too many problems. I know other people with Lupus cannot even go under fluorescent lighting. So I am very fortunate that I can still enjoy some sunlight, but I am still very careful though because I don't really know what it is doing on the inside of me.
Please keep asking questions, it will help you to understand Lupus a bit better and feel more confident about living with Lupus. Your doctor can help you on the medical side, but we can give you our experiences with coping with Lupus.
Diagnosed with Lupus - 22 June, 2010