Results 1 to 6 of 6

Thread: More lost...........

Hybrid View

  1. #1
    Join Date
    Oct 2011
    Posts
    2
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default More lost...........

    Ok went to the rheumatologist today. Basically she said as right now she can not say for sure whats going on . She said to go to dermalogist for the face rash just to make sure it is nothing they can treat . She put me on meloxicam 7.5 for now for the joints . She took 14 tubes of blood . And gave me a handout on sle lupus to read "just in case ". I go back in a month . Is this the normal process with this ? i was hoping to go in and them say i never have to come back that i was fine Since i only had a postive ana , joint pain , the rash and now sores in my mouth . she said for the droppy eye lid and not being able to open it in the am that i may need to go back to get a referral for nerologist (SP) , so is the normal for them to go threw all of this first ......TIA

  2. #2
    Join Date
    Mar 2011
    Location
    pinjarra, western australia
    Posts
    2,955
    Blog Entries
    1
    Thanks
    1,412
    Thanked 1,641 Times in 1,127 Posts

    Default

    tia, we have a thread explaining how lupus is diagnosed.
    basically it is only diagnosed after all other possabilities have been ruled out.

    this is one of the reasons for the 14 vials of blood. too rule out some other possabilities.
    it is also the reason for the run around.
    the doctors are trying to rule out possabilities, so they can treat your symptoms.

    it sometimes appears you are getting nowhere, when you are actually elliminating lots of options.

  3. #3
    Join Date
    Mar 2009
    Location
    Dallas, Tx
    Posts
    1,862
    Thanks
    145
    Thanked 413 Times in 339 Posts

    Default

    Yes, I think your rheumy is doing the right thing, blood tests and referral to other specialists are the way to go.
    Like Steve said, they have to rule out other things too, before making the right diagnosis.
    Welcome to WHL.

    Debbie
    I may have been dealt a bad hand, but at least I'm still playing with a full deck. ( most of the time anyway).

  4. #4
    Join Date
    May 2010
    Posts
    980
    Thanks
    57
    Thanked 310 Times in 251 Posts

    Default

    ... and remember, medicine is a science-based "art", and they have to constantly "practice" it... tic - but wishing you well, lots of prayers. It does take time, but don't do like I did, which was just to "brush around the edges" for years. Keep after your doc(s) until they make a determination. Like steve & Debbie say, it's a process of elimination with the auto-immune stuff...
    "There but for the grace of God, go I."
    "... His mercy endureth for ever."

  5. #5
    Join Date
    Nov 2011
    Location
    Leahi, Hawaii
    Posts
    70
    Thanks
    33
    Thanked 15 Times in 13 Posts

    Default

    The others are right - your Rheumatologist is doing everything right.

    My PCP has been doing the same thing your Rheumy is doing : Blood tests and eliminating everything else. It takes a long time because they want to make sure they "hit the nail on the head". I'm still working on getting a diagnosis also. It gets frustrating with all the pain, but knowing my doctor is doing his best and is actually listening and helping me makes the world of different. We all understand how frustrating it is, but we're all here for you! Best of luck to you!

    Blessings, Love & Aloha,
    Ty
    "Kindness is just love with its work boots on"...

    "No man stands so tall as when he stoops to help a child." Abraham Lincoln

  6. #6
    Join Date
    Dec 2009
    Location
    Atlanta Area - Dacula
    Posts
    1,824
    Blog Entries
    12
    Thanks
    388
    Thanked 408 Times in 330 Posts

    Default

    Yes,yes and yes your rheumy is doing it the same as mine did. 14 vials of blood, I went wow!!!! Big time. Steve's analysis is also right. Got to rule out everything else. As to seeing a neuro. I am told that my neurological problems are totally separate from the lupus. Although there are some here, whose problems aren't. That also needs to be determined.

    Hugs, Good Luck and Good Thoughts

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •