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Thread: Do I have Lupus?

  1. #1
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    Unhappy Do I have Lupus?

    I went to my doctor for the first time about a year ago because I hurt all over and at times had trouble walking. I started out with a ton of tests. When the test
    results came back I was chronically deficient in Vitamin D, my thyroid was off but functioning and my auto immune testing was slightly off. Well over the past year all kinds of strange things started happening to me. About 7 weeks ago I went to see a specialist who ordered 7 tubes of blood to be tested. I was at my GP
    doctor and found out that I tested positive to histone ab (moderate positive) she told me I had to see the specialist to know what diseases fell under this
    category. My GP doctor called the specialist and got my appointment moved up to November 17th. I am not sure what this means. When I googled it I saw a lot of SLE. I tested negative to rheumatoid arthritis. I am not asking for a diagnosis from anyone here as I know that you are not doctors, but can anyone tell me what this means?

    Not use to feeling so tired.
    MaryAnn

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    Hi MaryAnn, and welcome to WHL. We're thrilled to have you!

    It does sound like something's up, so I'm glad you got your appointment moved up. Is it for a Rheumatologist? I know that's the obvious choice; I only asked because my crazy trip started when my GP sent me to a hematologist for tons of blood work. It was only after a negative bone marrow biopsy and a positive test for Sjogren's that I finally went back to the Rheumy I had seen three years prior. At that time all my blood work was right on for lupus, but I wasn't showing any symptoms, so he told me not to worry about it. I think his exact words were, "Well, if you don't feel sick, you probably aren't." He told me he sees a lot of false positives. Because of that, once my symptoms started popping up one by one, my GP and I totally ruled out lupus. Oops.

    Ok, I kind of got off on a tangent there, lol. What I really wanted to tell you was that most of the time people have to wait months to get in to see a specialist. Perhaps your GP didn't want you to have to worry over the holidays, and made a courtesy call on your behalf to get you in sooner. As impossible as this advice is to follow, we give it anyway: Try hard not to stress out about all this. I experienced symptoms for about a year before my (undifferentiated) diagnosis too, and now, with proper treatment, I'm feeling a lot better.

    Again, welcome. It sounds like you've already looked around at some of our posts. I hope they're helpful, and that you find the answers you're looking for soon.

    Sharpie

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    Gizmo (11-04-2011)

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    hi welcome whl hope you get the answers you need soon .

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    The Baum (11-04-2011)

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    welcome to our cyber family.

    as you said, we are not doctors.
    but even doctors can have a hard time working out what your problem is actually called.

    this is because there is about 63 auto immune disorders.
    (we have a thread listing all of them, and there basic diagnosis)
    most of these disorders have overlapping symptoms.
    and it is common to have more than 1 at the same time.

    it does sound as if it is auto immune to me.
    what is important is to have the correct medication.
    the actual name does not matter as much as the correct medication.

    i wish you success with your doctors visit,
    but remember many of us had trouble, (and a long time), getting our diagnosis.

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    Gizmo (11-04-2011)

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    Thank you for taking the time to reply. I am very blessed with a fabulous family doctor. I have seen a rheumy and that is where I will go back to on the 17th.

  9. #6
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    Thank you for the support and kind words. I sure am glad this web site fell into my lap.

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