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Thread: Waiting on a diagnosis

  1. #11
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    Thank you both for your words of wisdom. Logically I know I have to keep pushing forward to further my cause so to speak. But sometimes I just want to say "forget it" and live with the pain. I've missed the last two days of work because I could barely get out of bed. I have morphine to take if needed and although I hate taking it, I had to today.

    Anyway, thanks again, it means a lot.

  2. #12
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    tricia I am so sorry you are in so much pain right now. I hope this flare of yours abates soon. I know on my really bad days when I have to stay in bed, I also have to get up and just walk around inside the house several times a day cause I will start hurting in spots that touch the bed. It's a bad catch22 I think. Does your dr know you are hurting so much right now? If not you should let them know. They need documentation of when it is this bad and the symptoms and stuff. {{HUG}}

  3. #13
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    Tracy - you're right about getting up and moving. Although I don't feel like walking around, it helps.
    My path to diagnosis probably isn't much different than anyone else's. I had seen a rheumy over a year ago who wrote me off with depression and possible bursitis. My GP recognized my problem was deeper than that and I have been on methotrexate and plaquenil. During this time some symptoms worsened and some were even new. I took it upon myself to find another specialist - so now I'm starting all over at the Lupus Center in Pittsburgh. I've only been to that dr. once and we are just waiting on tests, etc. I haven't called her to tell her about my pain because I'm afraid to. Weird, I know. For so many years I had been told that I'm too sensitive, a baby, a hypochondriac...I guess I started to believe it too although deep down I know it's more than that. Sometimes I think I just need to "suck it up" and quit complaining so much. I see the specialist again in July. By then I'm hoping we have a definitive answer and realistic treatment plan.

    Once again, finding this site is a Godsend. I just wish we all could have met under different circumstances!

  4. #14
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    tricia, new dr or not, I think you should call them at the very least and let them know, you never know they might be able to give you some relief. My MIL called me a hypochondriac one day LOL I can laugh about it now but I was FURIOUS at the time, especially since she takes more meds than I do and they don't know what the problem is with her. :roll: She was one of the first people I gave info to when I got my diagnosis so I could say I told you so.

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