Page 1 of 2 12 LastLast
Results 1 to 10 of 13

Thread: Sleep

  1. #1
    Join Date
    Sep 2011
    Location
    Amarillo, Texas
    Posts
    477
    Blog Entries
    1
    Thanks
    34
    Thanked 139 Times in 113 Posts

    Default Sleep

    So I know everyone with lupus has trouble with sleep, but I was wonder what techniques y'all use to help?

  2. #2
    tgal's Avatar
    tgal is offline Super Moderator Super ModeratorEmperor of the Solar System
    Join Date
    Jan 2010
    Location
    Houston, Texas
    Posts
    4,526
    Thanks
    1,548
    Thanked 1,742 Times in 1,211 Posts

    Default

    I took Ammityiptyline for a year and a half for my fibro and it helped with sleep. Then it stopped working on both counts. Now I simply stay awake until my body runs itself down (and hopefully that is in less than 24/36 hours)
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







  3. #3
    Join Date
    Mar 2011
    Location
    pinjarra, western australia
    Posts
    2,955
    Blog Entries
    1
    Thanks
    1,412
    Thanked 1,641 Times in 1,127 Posts

    Default

    there was a tread about this about 1 month ago.

    it was decided.......
    by the few that enjoyed it.......

    that there is only 1 sure cure .......


    sex

  4. The Following 2 Users Say Thank You to steve.b For This Useful Post:

    sharpiessave (10-17-2011), wendylee03 (10-18-2011)

  5. #4
    tgal's Avatar
    tgal is offline Super Moderator Super ModeratorEmperor of the Solar System
    Join Date
    Jan 2010
    Location
    Houston, Texas
    Posts
    4,526
    Thanks
    1,548
    Thanked 1,742 Times in 1,211 Posts

    Default

    Lol omg I needed that Steve! Thank you!
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







  6. #5
    Join Date
    May 2011
    Location
    Kansas City Area
    Posts
    110
    Thanks
    76
    Thanked 87 Times in 51 Posts

    Default

    HAHAHAHAHAHA! Awesome. : )

    I was gunna say a combination of xanax and ambien, but Steve's strategy is much more fun.

    Seriously, though, sleep is second only to pain in how this Mess has messed with me. Everything I try eventually stops working. I think I become immune to most meds too quickly, like my body won't be fooled. It's dumb, and I hate it. (The situation; not my body. No, wait. . . As much as I wanna promote self-love and acceptance, my body's trying to kill me, so I think it might deserve to be hated on a little bit.)

    Here are some of the multitude of things I've tried (in no particular order, and perhaps not relevant to anyone but me):

    I take my steroids as soon as I can in the morning. That means waiting an hour after the thyroid med, but still. The earlier I take them, the earlier I can get sleepy.
    I make my room super dark and super cold, so I can bury myself under blankets. Weighted blankets are a must for nighttime RLS.
    My doc has me take xanax an hour before I want to sleep, then ambien right before I lay down. That's one of the things that isn't working anymore.
    White noise! I have to have a fan, and a dehumidifier. I can't believe I just tried to spell that.
    This one's silly, but it works for me. I have a nighttime smell. A lotion that I always put on before bed. The smell is a comfort thing.
    I keep something light to read for like, 5 minutes when I hit the sack. Dave Barry and the like. Helps my head think of something other than The Mess.

    Man, there's sooooo much more. Sleep is one of those vital things that we can never seem to get enough of. In its own way, just the thought of it can stress me out. So I try to trick my own brain into thinking I don't care if I sleep or not. I'll just lay there, letting my body rest, trying not to think. (mostly impossible, that.) If I have to get up at a certain time in the morning, sleep won't come. But if I can just lay there, eventually it'll happen. Eventually.

    I'm psyched about reading this thread. At this point I'll try just about anything, so I can't wait to hear everybody else's routines.

  7. #6
    Join Date
    May 2007
    Location
    Seaside, Ca.
    Posts
    3,871
    Thanks
    196
    Thanked 948 Times in 732 Posts

    Default

    Mica,
    I take a Melatonin before bedtime and often use Steve's solution in combination with it. I'm super-sensitive to meds, so I don't use any strong sleep meds.
    Like Sharpie, I also like for the room to be cold and dark.
    My problem is staying asleep. I'm a middle-aged woman in early menopause, so I often wake up with night sweats and have to trek to the restroom.
    My legs wake me up with spasms, too. The problem is then getting back to sleep. (I could wake my husband up for more of Steve's solution, but the poor man has to get up and go to grad school) I'm often awake for an hour or so, but then I get some good sleep early in the morning.
    We need to get a dehumidifier soon, but I don't think that I will want to run it at night. I can't stand white noise - I want total quiet (except for the snoring next to me, but I've listened to that for 35 years)
    The sleep (or lack thereof) threads are always interesting. Check out the others from the archives.
    Hugs and good night,
    Marla

  8. #7
    Join Date
    Dec 2009
    Location
    Atlanta Area - Dacula
    Posts
    1,825
    Blog Entries
    12
    Thanks
    389
    Thanked 408 Times in 330 Posts

    Default

    I take a mucle relaxer to help with the muscle spasms. The neuro has me on mirapex for the parkinson's but the handout from the pharmacy says it's also used for RLS.
    The muscle relaxer usually works and I sleep.

    I like Steve's remedy better also. (wish it was available)

  9. #8
    rob is offline Super Moderator Super ModeratorEmperor of the World
    Join Date
    Feb 2008
    Posts
    3,681
    Thanks
    426
    Thanked 1,105 Times in 628 Posts

    Default

    I find sleep to be highly overrated, so I don't do it anymore.

    Besides, there will be enough time to sleep when I'm dead. (insert smiley face)

  10. #9
    Join Date
    Nov 2008
    Location
    hervey bay queensland australia
    Posts
    1,144
    Thanks
    151
    Thanked 207 Times in 176 Posts

    Default

    itake valium it was the only thing that helps me sleep only low dosage but it does the trick

  11. #10
    Join Date
    Jun 2011
    Location
    Monticello, Georgia
    Posts
    19
    Thanks
    14
    Thanked 0 Times in 0 Posts

    Default

    I have no idea what sleep is anymore! My husband poor man gets tired of having sex after a while, so I must suffer with sleepless nights until he recoups!

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •