I was diagnosed with SLE and Discoid Lupus about 8 years ago. The first four years were eventful but in the fall of 2001 everything changed. In October 2001, I was hospitalized because of an infection. Since then, I've just been getting worse. Two years ago, I had to stop working and go on disability. I've tried a lot of different medications (imuran, dapsone, cellcept, methotrexate, enbrel, thalomid, plaquenil, and now cyclosporine) So far, predinose is the only medication that helps with my symptoms.
I've been fortunate to find really caring doctors, but lately, I've been having a hard time coping with it all. I know that things could be worst, but I don't find any comfort in knowing that. I'm trying to hold on, but I feel so tired of all of it.
I'm thankful for this site and the opportunity to reach out.