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Thread: Lupus nephritis diet

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    Default Lupus nephritis diet

    Hi all. I'm diagnosed with class 4/5 lupus nephritis but the doctors say its curable. I was wondering what type of diet I should be taking? What food should I avoid? I know salt is a no no. My mom told me I should avoid bananas.

    I was looking at this website: http://www

    can anyone vouch that what they say is true?
    Last edited by rob; 05-31-2012 at 04:23 AM.

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    It is REALLY IMPORTANT to make sure you follow your doctor's orders about taking your medication.

    You can go on the most fantastic kidney diet, but without the proper medication, you are risking permanent damage to your kidneys, which means that you are at a higher risk of dying. I think that Lupus Nephritis is a little different to other kidney diseases, but someone more knowledgeable will be able to give you the correct advice.

    I am giving you the link for the kidney nutrition page of the Australian Kidney foundation. If you cannot access the web site because you are in another country, let me know and I will paste the information here.

    http://www.kidney.org.au/ForPatients...5/Default.aspx

    What medication has your doctor put you on for Lupus Nephritis?
    Diagnosed with Lupus - 22 June, 2010

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    Hello Missfearless,

    I would listen to Linda and what she's said although another member may be able to help but the best person to chat to about a diet would actually be the specialist when you see him/her as they'll put you on the right track more....it's only like people having diabetes if they need to see the dietican then they're refered on by their specialist.

    All the best Terry xxx

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    Missfearless, I have been on all kinds of diets to try to take less meds and none of them healed me. I do believe in eating right so I don't cause more problems. You're right high salt, high sugar, high fat, etc. Is not good for any of us. I have a friend who has kidney disease from AI issues and he was put on a diet by his kidney specialist, which is low in potassium, but he he also takes an immune suppressing drug. His wife took him off the drug for awhile, and he is now on dialysis for the rest of his life. I am not trying to frighten you, this is just the facts. We do our best to find good docs we can trust and we follow their expertise, because Lupus is not like a cold, where we can play with diets, herbs, etc. And not follow our docs orders. My rheumy works with me when I want to try something. For example I recently tried tummuric for inflammation and my doc okayed my backing off my nsaids to see if it worked. I did not and so I am back on it. Trust the docs and those on this forum who have learned some things along the years of battling AI diseases. Keep asking questions and maybe you will not mess up as much as I have! (((hugs)))

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    Quote Originally Posted by missfearless View Post
    Hi all. I'm diagnosed with class 4/5 lupus nephritis but the doctors say its curable. I was wondering what type of diet I should be taking? What food should I avoid? I know salt is a no no. My mom told me I should avoid bananas.

    I was looking at this website: http://www.speedyremedies.com/home-r...nephritis.html

    can anyone vouch that what they say is true?
    Hi Missfearless,

    You have been given some solid advice from others here. Diet is a frequent subject here. You should know, that there is no diet that is clinically proven to have any effect on autoimmune disease activty in Lupus. Also, unfortunately at this point, there IS NO CURE for Lupus, "natural", or otherwise. Anyone who claims that they have a "cure" is being dishonest.

    I've never heard of avoiding bannanas. I eat one every other day because, well, I just like banannas! I've never noticed any problems. One food that is proven to have a bad effect for people with Lupus, and that we should avoid, is Alfalfa Sprouts. Sprouts can induce a flare in many people.

    A well balanced diet is an important thing for all of us to maintain overall good health, whether we have Lupus or not. But to attempt to modify disease activity with diet alone is a dangerous activity with no proven positive results for Lupus patients. Have a balanced diet, stay on your meds, and follow your Dr./Rheumotlogists orders. Your Dr./Specialist can help you with advice on a balanced diet, or you could seek advice from a nutritionist.

    Rob

    PS-Welcome to WHL!

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    Rob,

    I do know bananas are ok but i have a game swallowing them with the sjogren's even cut up they really hurt my gullet but you've just stated something i did'nt know about sprouts and i've been eating those for years...just love them, well that's a green took off the list and just alerted the chef.

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    Hi There,

    Everyone has given you some wonderful advice on this topic so I really don't have much else to say about that. I did want you to see why we are so passionate about taking your medications and not being suckered in to some "diet of the month" cure for Lupus. I am about to post something about the board rules. I am NOT saying that you did anything wrong, the part I want you to read is the 2nd part about Susie's daughter. It is because of what happened to her that we are here. It is also why we make sure that fad diets and natural pills are not EVER sold as "cures" on this board.

    Board Rules and Susie's Story
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    Hi everyone, first off, don't panic. I am taking all my medications! I just want to avoid certain food that could possibly react with my medication. I read online that oxalic acids can react with calcium and cause things like kidney stones. I was referred to a dietitian but she was crap. She told me to put on more weight when I was already gaining weight like crazy. She didn't know anything about my condition at all.

    I just don't want to take my medicine on one hand but intake lots of salt.
    That will not help with my recovery. I am NOT trying to stay away from my medicine. I am on the following medicines:

    hydroxychloroquine sulfate
    mycophenolate (cellcept)
    calcium
    prednisolone
    potassium chloride
    furosemide

    I have yet to see the renal doctor, the earliest app I could get was on 30th June because he is a very busy man.

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    30th of June isn't too bad! We see people waiting for months (you would think these doctors would know that stress doesn't help us and waiting 3 months is stressful).

    I really don't know what to tell you other than most we are encouraged to eat a heart healthy diet. The same old pyramid that you learned in school is the one we are supposed to eat. Now, there are times that our doctors may ask us to try something else. For example, my doctor wants me to start a modified atkins diet because there have been studies showing that it helps reduce seizures. There is a whole list of things that I have to do first and that I have to watch for because we don't want my other symptoms going crazy. I had another doctor that told me to go vegan and another that said "organic foods only". Come to find out those two doctors told all of their patients to do that and didn't take into account my illness.

    Eat healthy.Take care of yourself and you should be ok.
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    Quote Originally Posted by missfearless View Post
    Hi everyone, first off, don't panic. I am taking all my medications! I just want to avoid certain food that could possibly react with my medication. I read online that oxalic acids can react with calcium and cause things like kidney stones. I was referred to a dietitian but she was crap. She told me to put on more weight when I was already gaining weight like crazy. She didn't know anything about my condition at all.

    I just don't want to take my medicine on one hand but intake lots of salt.
    That will not help with my recovery. I am NOT trying to stay away from my medicine. I am on the following medicines:

    hydroxychloroquine sulfate
    mycophenolate (cellcept)
    calcium
    prednisolone
    potassium chloride
    furosemide

    I have yet to see the renal doctor, the earliest app I could get was on 30th June because he is a very busy man.
    I was told to not take calcium, potassium or magnesium at the same time that I take the plaquenil (hydroxychloroquine). I take my plaq in the morning and the other supplements at bedtime.
    Hugs,
    Marla

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