I'm by no means an expert but I'm almost positive I have lupus or mixed connective tissue disease (mixed on low with lupus) but I have only experienced a few days of take your breath away exhaustion and only one night of unbearable pain. I honestly believe that what you eat and how you manage stress is directly related to how you feel. I only eat protein, fat and veggies. No starch, no wheat and no sugar (Stevia and Xylitol are your best friends) Yes it sounds flavorless but it's really not. I also take a few vitamins like B-12 and occasionally a magnesium drink called natural calm to keep me even keeled.
I think these things have kept the unbearable factor check. The dietary changes also keep any prednisone issues in check.I am in no way claiming this to be a cure but a valuable change in lifestyle. I say this because I notice immediate effects from fatty beef and any starch based products (in terms of inflammation)
In addition to my endless research into autoimmune conditions I like to delve into the food aspect of self care.
Whenever I don't feel like doing it, I always remember that tomorrow I may not be able to do it. Then doing it becomes a blessing instead of a burden.
I got some stuff goin' on.